Tag Archive for: Hope

World Cerebral Palsy Day, 2024

I find myself in a strange, yet lovely and new spot as I age. I am far more accepting of myself, the roles that I am called to, the ways these change like the tide and the ways they are beautifully and achingly the same. My role as “mom,” is ever-changing as my kids also age. With my oldest in college this year, my 17 year old son on the very brink of adulthood and my 13 year old daughter changing before my eyes, I would be remiss if I didn’t take an honest look at how I am changing as well…

They don’t need me the same ways they always have; they need me in different ways now. (By the way, THIS change is also wrought with both/and, the grief of changing family dynamics and the exhilarating moments of growth.)

Yes, I MUST acknowledge both/and as our family shifts a bit…otherwise, I forfeit the beauty and right-ness of God’s plans for all of our lives, rather than becoming bitter, fearful and sad at all the independence and therefore, change, that plays out in every moment of every day in our family.

There are other changes too…

I have been working for two full years with EMDR International (EMDRIA) to become a certified EMDR clinician, which will reach completion this week. Just as quickly, I will begin the process of becoming an approved consultant with this ground-breaking organization. As I look at the next chapter of this career I love dearly, I am focused on bringing continued perspective and growth to brave clients as well as assisting other therapists who also care deeply about complex trauma and the healing work of EMDR.

I am a part The Fred Rogers Educator’s Neighborhood for the next year as well. I am very honored to have been accepted by Fred Rogers Institute for this year long study. Along with a group of others who have been impacted by Mr. Rogers, we are together learning  how to utilize Mr. Rogers’ wealth of knowledge, study and perspective in many areas of child, family and  professional development. Though we have met only twice, I am so thankful to rub shoulders with others in the world who genuinely believe, like Mr. Rogers, that kindness really does change us all. And heavens, don’t we all need more kindness in the world?

As there always is in life, there are difficult adjustments too: this week, two significant deaths in our world. Though I specialize in grief and loss, it is still very personal when it happens to you or in your very personal corner of the world. Losses bring us to the opportunity (I say this so gently,) to look back, to grieve again or in new ways and to use losses to inform how we want to LIVE going forward.

There are new and enduring friendships, growth in so many areas as we have recently come home, again to the church that played such an important part of my life from age 14 – 24. God has stretched, challenged and blessed our family in profound ways in the process of leaving our former church, grief like I have never known in that process and the faithfulness of finding a new church community. It is both the biggest blessing to be cared for, to be vulnerable and to love and care for others in this new and not new church home.

Finally, there is the both/and as World Cerebral Palsy Day was observed on October 6, 2024.

It is a heart-wrenching thing, this part of my identity that I so wish wasn’t AND after many years of grappling with what it means for and about me, to find pride, hope and love for myself and fellow CP warriors. It is so holy to see, validate and celebrate the bad-ass-ness (I made that up, can you tell?) that comes with living with and caring for those with this disability. This week, a friend finally got to bring her son (who has CP) home from at least a month’s stay in the hospital for complications with seizures and other physical issues. I am stunned by her son’s (and her own) positive attitude after so much. For as much shame as I have carried and overcome in my lifetime around my own diagnosis with CP, it is gift to be able to smile and be proud on World CP Day.

Here’s the thing…God is not, will not and has never been surprised at the ways he created us, the things we do need to go manage here, apart from heaven and how we are limited in our humanity in the midst of these things. He IS with us, even if it feels like he absolutely IS NOT. Deuteronomy 31:8 says, ” The LORD himself goes before you and will be with you; he will never leave you nor forsake you. Do not be afraid; do not be discouraged.”

Ohhhh, that’s such a hard one, isn’t it? We are so human in that feeling that says, “why does God put me through this? He COULD change _________________…..”

I hear it multiple times a day and my own reaction is understanding the question AND compassion. What I hear in that phrase, I immediately  think, “oh, he is NOT, putting you through it; he is holding you, as he himself hurts that this is happening too.”

I do not understand all the mystery that surrounds the what’s, how’s and whys that surround God and his sovereignty. I have been there too, crying in rage, frustration and desperation. I have also come to a place where there is more peace in releasing the whys to God’s care and fully trusting him anyway…

I suppose that is how, after many years, many feelings, many experiences and many prayers, I can joyfully put on my green World CP day t-shirt, raise a “cheers,” to my fellow bad-asses, and hold space for that rather than the negative.

I am curious, how are you experiencing change in this season? Maybe we can hold each up, give more care to ourselves and others and float on these crazy waves of change rather than fight them…

God, who is in it all, through it all and who holds it all together: Thank you for understanding our limits, frustration and even anger when things aren’t changing for the good. Thank you being near, always. May we seek your understanding, your heart and greater trust in your love and goodness. May we see ourselves and each other with your vision, compassion and desire for whole-ness. May we know love and joy as only you can give.

xoxo

Both/And

Deuteronomy 31:8

Angst, agony, excitement and hope…

You can feel the energy building in your body, your head spinning….realize you must find a way to manage it….

Lace us your shoes; you leave your Air Pods home and now listen to each footfall, hoping you will find the answer to the question that is rattling your insides, even though the question itself is unclear.

You’ve been here before, this restless, angsty spot that feels both frustrating and exciting at the same moment. And even though you have felt this restlessness before, each time it is again surprising and unknown.

Maybe you are a high school senior, with a horizon full of dreams, questions, fears and possibilities. Or you are a newly pregnant mama with so many feelings at once. Perhaps your spot is one of fear, and unknowns you didn’t ask for. You are on an edge of new things, even though you simply long for “the old.” Maybe you are in a job that has lost the joy and you dream every day of the next or new chapter. Finding love again after a broken heart, a job transfer, retirement or something else. Maybe you are taking on a new challenge in your career or longing to add “____________” to your story.

Whatever THIS spot is for all of us, It IS both an exciting and terrifying one. Sometimes the both/and is an extremely difficult thing to hold inside ourselves.

The older I get, the more I realize that living in the both/and is far more important and “normal,” than it is to have a “definitive answer.” What I mean is, most of the time I am teaching how to acknowledge and get comfortable with the unknowns rather than helping with a single dimension of emotions and experiences.

I recently spoke with a parent who is newly divorced and is adjusting to a new life, including shared custody of their child.

“Stacy, I can’t just be ok. As soon as I pick up my child, which I counted minutes until I could do so, I immediately begin dreading the moment when I have to bring them back to my ex.”

This is actually a common difficulty that is voiced to me in the privacy of therapy. I cannot imagine that sense of joy and dread at the same moment. I pray for many who find themselves in this situation – it is one of the most difficult in the world from my perspective.

I spoke with another parent who said to me, “dropping my child off and leaving them at a college many hours away from our home is one of the hardest things I have ever done.” The sheer agony of separation after you have poured your heart and soul into them is impossible to comprehend. And, the joy of watching our beloved kids soar? Well, that too is indescribable. I can relate.

The now and not yet…

both…and.

Our lives are more full of these sentiments than the moments of feeling just one feeling (and now that I mention it, we’d all just love to feel “good.” would we not? )

I can see so many clients, friends and families faces as I type. It is agony to be IN the hard; pure agony. And, when we have someone with us, to hear, hold, yell, comfort and understand, it becomes a bit easier.

May I give you a glimpse into my office – where both/and is the standard?

She hung her head and cried until her whole body shook. I sat across from her in my office, feeling my own heart hammer as she described “fighting cancer again.” Her journey held so much insult this time around. She and her husband had both just retired, planned a “trip of a lifetime,” and now had to forgo it so she could begin a grueling and hopefully life-saving regimen of chemotherapy.

“I know you are going to BOTH/AND.” She blew her nose in soggy Kleenex and I leaned toward her with a box of new ones. She took two out of the box, then blew her nose demurely.

“Yes, I might….but then again, maybe not yet,” I answered her. We talked about her faith, her love for Jesus and her anger at him that seemed to bubble up without any warning. We talked about the injustice of the new diagnosis, mere months after a routine checkup with her family doctor. We talked plainly about fear and the terror of death. Then she straightened up, sat primly in my office chairs and tried to switch gears, I think for my benefit.

“I’m sorry, I’m good now…I’m sorry I cried.” She looked at me from across the room and I felt internally sad at the whiplash she had just been through. She began finding every single reason to get away from the subject she had just wept about.

“That must be so hard to have such limited time to feel all these hard emotions,” I started gently.

“No, I am fine!” She stated with false bravado.

“You are allowed to be scared.” I said, meeting her eyes. “Do you know that it’s ok to say that, both here and anywhere you need to?” She dissolved into shaking sobs again, soaking another Kleenex.

Our next few months were filled with ALL the both/ands, fears of leaving her beloved family, loathing about medical side affects of chemotherapy, injustice and cancer; comfort found in her well-worn Bible and relationship with Jesus Christ and her wonderings about heaven. She wouldn’t talk about it, much, just referring to it, “when I get there.”

We talked often about my favorite Psalm, 13. It is the ultimate both/and to me.

She continues to fight the cancer that threatens her body, but not her heart and soul. She only rolls her eyes a little when I still mention both/and. Her eyes glisten when she speaks of being with Jesus and loved ones she longs for. In this context, the excitement for heaven is as real as the hope for more time.

She continues to teach me more than I believe I teach her. Love, passion, drive and joy in the life she gets to continue living. Not letting fear drive, we say throughout our time together.

She is just one that I have the honor of spending my days with. One of the strongest I’ve ever met, along with her family. There are others in their own middle, each battling to hold feelings that seem to oppose one another. They tell me often about being disgruntled that they know both/and AND grateful that they know both/and.

That is exactly right, being able to acknowledge our grief, pain and fear that may not be best described with words….and, holding unswervingly to the hope we profess.

“Stacy. When will I get THERE? When will I just be ok?” You would be shocked at how often I am asked this or something very similar. Oh, my heart WISHES I could answer this in the way soo many would like me to…I cannot. I often answer with something like this: “I know it’s so hard to wait…how do you care for yourself in the waiting for the next right step.” This is my verbal reply. Most of the time, this is the answer in my own head, sometimes a version a what I say to clients, my beloveds, or myself: “You are getting there, In exactly the right time, in the way he allows. If there is the right college decision, getting an answer after tryouts, awaiting test results, finding fulfillment, love or purpose after a long drought, Jesus is already there. Keep holding on, trusting yourself and being kinder than necessary. In the meantime, give grace. Listen more, speak less. Be a friend to yourself and others. Allow for the whole range of being human, feeling all the things, receiving comfort in many ways and trusting that somehow, all shall truly be well, even when we can’t see it.”

xoxo

Both/And

Psalm 13

Being With….

(For JKB, EGM and all who need a reminder)

Perhaps I have mentioned it before, perhaps not. I am a huge, and I do mean, HUGE, Olympic addict. I credit my parents, with whom I watched the Olympics faithfully as a kid and have continued in my own family.

As I was glued to every moment I could be in the last few weeks, I kept seeing this commercial, Second Language. If you missed it, here it is again.

https://youtu.be/Whm_-aL9HmI?si=5Ii-K-NYfiyQaD0v

Each time it came across the screen, it struck a bit of a different chord. Initially, I was so impressed that it was an ad FOR Jesus, playing prominently during the OLYMPICS. Think about it. There were such big investments from sports in many other commercials. And all the sudden, just as they did in the Super Bowl commercials, here was a conversation about Jesus, from hegetsus.com

The commercial asked, “what are the most difficult words to say?” I identified with the humanity in the words – “I was wrong,” “I forgive you.” “I am sorry.” Those ARE difficult…Then, someone said, “Goodbye.”

I spend so many of my days as a therapist hearing about, learning about, assisting with and even helping people stop running, from goodbye. For something that is so required, this side of heaven, our society has such a hard, hard time with goodbye.

For most, goodbye is associated with some sort of separation from someone deeply loved. Perhaps because of distance, necessity, painful circumstances or death, it’s no wonder that “goodbye” is something that most of us want to avoid like a plague. The circumstances can be varied, traumatic, expected, shocking, the list goes on and on. It is not something that anyone enjoys or wants to be good at.

And…it is necessary for all of us, at some point, isn’t it?

I have shared some of my most impacting losses in these pages, the experiences that in all their difficulty, have led to the love, redemption and depth of who I am now. But the getting there? Well, that has been anything but simple. That is the heartbeat of why I do what I do; first my own, then our collective experiences with not knowing how to say goodbye.

Sometimes, we must say goodbye to a “normal,” functioning body because of injury, cancer, illness or disability; goodbye to someone we love dearly. Perhaps we face goodbye to security, control, pets, siblings, jobs, plans, dreams. I have spent time in what feels like the very pit of hell with parents who must surrender beloved babes back to Jesus, with families who surrender loved ones to mental illness, addiction and/or personal choices. I have watched friendships die in many ways from kids to elderly, most times with complicated dynamics. There is goodbye to seasons, youth, identity, purpose. We grieve times of complete and utter injustice. Goodbye is in reality, is one of our most difficult, significant parts of being alive.  

Can we say goodbye well?  Is that even possible?

In a very therapeutic, but real-life sense, my first thought is yes. We begin by being IN it, being present with the fact that you are grieving: naming the pain, anxiety, sheer alone-ness and finality of goodbye.

This is so much harder than it seems.

Many of us have become skilled avoiders of most of our feelings, myself included. We often scroll, shop, eat, drink, work, play, yell, sleep, numb or self-inflict pain to avoid feeling the pain of loss. I have heard countless, understandable methods and reasons we all use in order to NOT FEEL the gravity of loss. It is unthinkably hard to sit with the feeling and the other emotions that come with it.

“Stacy, just tell me how to make this feeling go away, I don’t want to be grieving for too long.”

“Aren’t there steps to this? Just tell me what they are and then I be done feeling this…”

“Can’t you tell me how to make this go away?”

My heart aches when I hear clients nearly beg me for the “quick fix” to the feelings that threaten to overtake us when we are grieving.

Do you remember the book, “Going on a Bear Hunt” by Michael Rosen and illustrated by Helen Oxenbury? It was a family favorite before bedtime and I am sure that husband and I STILL know it by heart. Throughout each leg of the family bear hunt is the refrain, “you can’t go over it, you can’t go under it, you’ve got to go through it.”

So it is with healing the grief and many losses there are in the human experience: the only way through, is through. As painful as it is, I’ve learned to help people heal from every loss, struggle, painful experience, going through is always the beginning.

If you are annoyed, I understand. I’ve had that in my office too, sometimes annoyed at me for saying these very words. Of course I am going through, Stacy. I don’t really have a choice.

Maybe a good word here is acknowledging, being with:  holding space for our honest feelings. It means, as Mr. Rogers encourages, mentioning our hard, raw, sometimes unbearable emotions so that we can manage them (instead of using all of our much-needed energy to avoid them). I think this is the hardest part of being a human who feels, this idea of acknowledging and being with those feelings, especially when the feelings are so painful. It is hard to feel the feelings with no end date. So…. dang…. hard.

Often, because actually feeling our feelings in scary and hard, we start avoiding, striving for a plan, or talking ourselves into “getting through” loss. It is painful, breathtaking, seemingly endless and exhausting. But here is the truth as I know it: the most important part of grieving is when we name, hold and share our deepest sadness, even when no one can really fix it. The being with, honoring, acknowledging and allowing for our own vulnerability allows us time, presence and the ability to surrender. Then when we are ready…we allow ourselves the process of going through. Not just enduring, but the hard work of taking one step, then another, feeling, weeping, feeling, and whatever else is our truth.

I have shared many times over the course of this blogs’ history, the relationship I have with our oldest daughter, (E for short). Yesterday, we moved her into college for the first time. It is my absolute honor to love and care for her, be her Mama, to soak in EVERY swim stroke, argument, joy-filled and driven moment. And because I believe in the full-hearted investment with her, brother and little sis, the goodbye between us with nothing short of gut-wrenching. I will spare you and myself all the details, (too soon!) but suffice to say, I am fully, going through it, in regards to goodbye to her. And I am aware of the positives about God’s plan, her readiness and the excitement ahead of her and our family.

You see, they are all true…the hope, excitement, readiness, pain, loss and questions about so many parts of this process. I KNOW without a doubt, that in order to process this complex change in my life, I MUST get comfortable with the multitude of emotions that go with this very nuanced change in our family system.

So, we have laughed, bawled, felt punched in the gut, celebrated, cheered, planned, (had a few fights,) stretched, made mistakes, asked and given forgiveness and so much more throughout her senior year. We’ve tried to be present and allow for abounding grace. We have tried to let more of the small things go, invest in the large things and remember it all with a lens of grace. 

None of us can completely understand the pain of someone else, but we CAN sit and listen, be WITH, even if someone who is hurting, or simply needs quiet. We can sit in the through until we or someone else are ready to take another step to the next right thing. Then another and another. There is not one right process for any of us in regards to loss. Many, find peace and hope in Jesus. For others, it is found in being active and experiencing nature. For still others, it is the effort of just getting out of bed in the morning. Everyone’s through is a bit different from anyone else.

I don’t promise often because I am human and there is a good chance I will somehow break my promise. But…I will promise you this: if you are in the throes of pain, abandonment and disillusionment of loss, fear and darkness, Jesus is relentlessly seeking you, in order to be with you. Eugene Peterson wrote, “God loves you, He’s on your side. He’s coming after you, he’s relentless.” He is the one who doesn’t fail. And it is he, HE, who will do away with goodbye once and forever. He is hope: past, present and future.

May you feel his pursuit, his being with you, however and wherever you are; his holding you in the most painful and the hope of his making all things right and good.”

xoxo

Both/And

Psalm 13

Leaves on a stream, Montana and taking deep breaths…

(For my love).

“Shhh….” My love wrapped his arms around me, my heart hammering and breath fighting to get down to my lungs. “Imagine a canoe, gliding through the water, no sound, other than the water of the river. Drops drip off the paddle, look around and just see everything with wonder….”

After he’d described this to me a few times, I felt my body begin to settle, my muscles gradually aching with an unwinding from being tensed up due to CP and anxiety. I couldn’t feel each heartbeat any more, which was good, because I was calming. My love just continued to hold tight, and the grace he gave stunned me – I’d never known a love like this one and never will again. It is the closest I can imagine to the love of God, which I know was God’s very plan for marriage. Still, if I am honest with you, it is tough to feel worthy of this much love and grace, from both Husband AND the God of the Universe….and both seem to lavish it on me over and over.

This river is a long, unintentionally cultivated image between us, born out of many things. It is my favorite, most calming imagery when my emotion brain has highjacked my system, when my thoughts race and I can’t seem to slow them down; when I am triggered by, something. Anxiety among those with CP is very common, but we know that those without CP are also greatly impacted. The numbers of those diagnosed with anxiety has sky-rocketed in the last 5-7 years.

I hear it over and over in counseling sessions: the moments of flight, fight or freeze when something alarming sends a signal to our amygdala to release cortisol and adrenaline (emotion brain). In the same instant, our ability to access logic and thought, problem solving and sometimes the “obvious” reaction (logic brain), is rendered useless until something calms that overworked amygdala.

For nearly as long as I have been a licensed MSW and practicing counseling, this concept has been an important part of my sessions, at least once a day; but often, more than that. It is, along with both/and, the most important concept that I teach. It is not uncommon to have a laugh with clients who after a few times hearing it, are lovingly complaining that once I teach it, they can’t unhear it. Believe me, I get it! I even eyeroll myself at times when I just want to rant and engage in emotion brain, but instead, the words in my head are, “deep breaths, smell the flowers, blow out the candles.”

I use so many analogies with clients, some funny, others poignant and others downright silly, but I don’t know….maybe we all do better if we have a picture in our heads along with an important concept. I often ask them if they remember old cartoons when someone is panicking and breathing into a brown paper bag? While we giggle about the images, this is how it is with our amygdala: they just need AIR…slow quiet breaths in order to get back to a “normal level of stress,” turn off the flood of adrenaline and cortisol and return to logic brain.

For me, there are a couple instant images when I think about managing anxiety: anxiety floating like leaves on a river and Montana.

When I was an MSW intern at our local Hospice, I soaked up as much knowledge as possible from my gifted supervisor and the entire team, a multitude of disciplines and so many books on death, dying and the grieving process. One such book that left a lifelong impact is Dying Well by Ira Byock. It is a book filled with the truth as I and so many others have have lived it in regards to death and dying. While that entire year spent at Hospice was life-changing, I think the book normalized and encouraged the lens that was already developing for me, the lens of value, dignity, respect and normalcy in all areas of life, not approaching death or grief as a taboo subjects but instead, striving to be with our friends, family, neighbors, communities and even acquaintances in this stage of life. It was another layer of not wanting the assumptions, not about someone dying, their thoughts, needs or purpose. “We needn’t wait till death is knocking at our door to realize that the treasures in our lives are the people we love or have loved,” says Byock.

The book has a way of showing how the pace of slowing, how the being with one another IS the gift, even in end of life moments. It is the vision of release, slowing drifting as the river carries the leaves: our fears, pain, desire to fix, our deep grief in the loss of ones we love. All of these images have become the very fabric of my being. Acknowledging, processing, grieving and being at peace.

I drank up every sentence in that book. At that time, Dr. Byock’s blurb in the back pages said that he lived and worked in Missoula, Montana. And at the time, that was my only frame of reference for Montana. One day, after a long work/internship day and evening classes toward my MSW, I told my boyfriend (now husband,) “I think we should just run away to Montana. I want to go work with Dr. Byock.” He looked at me quizzically and I explained, Dying Well, my admiration for Dr. Byock and how the holiness of Hospice work was seeping into my bones. He hugged me tight and said, “I’ll go to Montana with you….” (there is a reason he is husband.) From then on, when I had a particularly rough day or a very inspiring one, I would somehow insert or inquire about going to Montana. And he always says the same thing: “I’ll go to Montana with you…”

We’ve been together for nearly 23 years and all along the way, Montana has remained a dream. Kids, homes, dogs, life, required our finances and to be honest, the time has just not been right. Though I now sometimes surf VRBO and Airbnb when I have a day and dream of Montana, hint shamelessly and somedays, just threaten to book our vacation, we have not YET. When we watched the series, Longmire, a few years ago, I even decided on the river I wanted to find…then found out is ACTUALLY in New Mexico! Still there are rivers waiting in many places…and watching Yellowstone has stoked our desire to go, in all new ways….

But we haven’t yet…

I think the dream of Montana and it’s calming power is actually in the imagining. Not that I don’t want to go! But I think if the idea of the river, log cabin, canoe and horseback riding can instantly calm me, then perhaps I am afraid to change the dream with the real live experience…

Do you know what I mean? Have you ever hoped for a thing and then it FINALLY arrived and the luster wore off way too soon? Then it was just over….. I would be heartbroken if these images that have been so steadfast and comforting, the splash of the river and the drips from the canoe somehow changed in real – life. And…we really do want to go find my Longmire River. I KNOW deep down that Montana’s beauty will be unparalleled. And…I really want to go sit on the bank and thank Jesus for the majestic landscape, to hold my love’s hand and say, “I’m so glad…we finally came to Montana.”

I pray you have ones that will hold you during moments of inspiration, fear, anxiety and everything in between. I pray all the dreams and hopes that God has placed within you will be realized, ten-fold. I pray that you can see him everywhere from the beaches in Michigan, fields of Ohio, the evergreens of Portland, the crashing surf of Hawaii and wherever your place is….

I pray you are inspired by leaders in your field, that hope and dignity abound and that we all can one day not need images to calm us, but that God’s presence instead floods every inch of our beings.

I pray for the richness of living well and when the time comes that grace and mercy usher us to the feet of Jesus, the arms of God the Father hold tight with peace; and HIS gentle murmur, all shall be well.

Both/And

1 Peter 5:7

xoxo

Ink…

I have a multi-faceted personality, if I can be honest with you. I am all sorts of things: introverted and love when I get to interact with my closest circle or those I find a new connection with; both anxious about the how’s, where’s and what’s that accompany my disability and very comfortable in other familiar settings, especially my back porch! I am both a rule-follower and I have a bit of a adventurer, perhaps even rebel streak. I’ve never tried cigarettes but have long thought IF I was ever going to, I was going to be a badass and try a cigar… (my 13 year old daughter’s eye’s popped out of her head as she proof read THAT sentence!)

I’ve long been living with both/and even before I knew it was a thing…

My first tattoo happened in my twenties. My dear friend Jeannine and I ventured into Purple East, which at the time, did tattoos. I felt so brave (and a bit badass if I am really honest) as BJ etched a tiny Jesus fish on my ankle. The backstory….

I was working at the time at an alternative education high school and soon into my job, I began to see how, for so many, tattoos are an external view of the parts of their story that they were willing to physically and emotionally show. When I stopped to realize what a privilege that is, it made me curious about every single tattoo I encountered. It also began to normalize the idea (and importance for some,) of wearing what is most important to you….

I had the privilege after getting my degree in social work to blend a job I adored and being “in ministry,” which as I age, just makes me grin, because no matter what we do, when we follow and love the Lord, we are all in ministry, aren’t we? I so love this idea…. and anyway, I digress.

Because I knew without doubt that my love for Jesus was forever, I decided that I wanted a tattoo, a small ichthus (Jesus Christ, God’s Son, Savior some commentaries translate). I remember explaining my surgery scar to BJ, the tattoo artist, the reason for my ichthus and the call to my parents to tell them about it afterward. I was both nervous and proud as I waited for their reaction, after this adult decision of my own!

I had also decided I wanted 2 Corinthians 12:9 curved around my ichthus which says, “My grace is sufficient for you, in your weakness, I am strong.” It was placed where it was, (as close to that big surgery scar as possible) as a reminder for all Jesus has brought me through, and all he has yet to: the painful, hard and really beautiful. It is a reminder that at my weakest, (or my strongest), he will be my strongest.

I will NEVER forget my first day back to the high school after getting that tattoo. It was late spring, I had intentionally worn shorts. I was expecting the question, hoping to share about Jesus. Because of the separation of church and state, I could not bring it up, but if they asked, I could definitely answer! It came much different as I expected though…

“Miss, what’s that say?” one of the girls half sneered, half curiously asked me.

“Corinthians. It’s a -” I began to answer but was interrupted quickly.

“Well, that your boyfriend?” She emphasized, wide, expectant eyes.

How I loved that moment and will never forget it, ever. It was real and true to the lives these kids experienced. I did get to tell her about my Jesus, my verse and so much more. For the next couple years in that school she would smile when she saw me, introduce me to friends as “Miss Stacy, she loves Jesus,” point out the tattoo or even tell the “Corinthian/boyfriend” story. I loved every moment.

That tattoo faded a bit, but brought about so many conversations as many years passed. In February 2020, there was this, an event and post I wrote just before COVID changed us all, the landscape and how we all all see things… in our weakness for sure.

A few weeks ago in church we had a sermon on “what does God think about politics.” Ben Post spoke eloquently, introduced Ve’ahavta, Hebrew for “and you shall love.” I have been resonating with his words for weeks, the idea of loving God and his people, despite differences. I am a strong believer in kindness, caring for others and giving the grace we would desire for ourselves. E wrote “Ve’ahavta” on my wrist on that Sunday and it felt like it was meant to be there. When it washed off, I asked her to write it again and again. Then I knew, I wanted it there permanently in her writing. Today, she, Jeannine and I went to do just that. (They for support.) I am so thankful for the example of my Savior to LOVE. I hope that reminder to love only gets stronger. I am thankful for the many conversations to come from E’s handwritten reminder. And you shall love indeed. ❤️

I must tell you that even TODAY, FOUR YEARS and A FEW MONTHS LATER, I still, (STILL!) love seeing, feeling and explaining what this means to me. I love her writing, the consistent reminder to love. Just that…LOVE. Love when I see the annoyed cashier… or the client who I need to remind about an overdue account. Love myself and the extra pounds I wish would disappear, and the pups who chewed on my new shoes. And you shall love ( really try to model yourself after Jesus…)

Two Springs later, my youngest sat on my lap, running her finger over E‘s word on my wrist.

“Mama, are you going to get a word in my writing too?”

“Do you WANT me to get a tattoo in your writing? What would it be? ” I asked, surprised, but not surprised by her question.

“Yes, I do…” she said thoughtfully, then a few minutes after we both sat in silence, she asked if she could write her word. I knew if it had worked that way for one, it just might for the next….

She carefully, with fierce concentration and her tongue sticking out the way it always does when she is drawing the most important thing, wrote the word… J I R E H.

My heart skipped a beat…

She and I would belt out Jireh by Elevation and Maverick City every car ride to school, it was our anthem and our understanding of Jesus’s own heart. The Hebrew translations, in my limited knowledge says, “the Lord will provide.” It is layered with personal meaning as well as biblical meaning.

“Why that one, babe?”

“It’s our song and when I hear the song or the word I feel at peace.” I hugged her tight and wondered how long it would be until I made the appointment…..

A few weeks and many rewrites later, hubby got home from work a bit early. I spontaneously asked him to call the tattoo place just a few minutes down the road to see if we may be able to get it done.

That evening, my son’s best friend came over, was the first to see it and his smile was one I will not forget. “That is the coolest tattoo ever.” Joel told me. I smiled, knowing I loved all three of my little drawings….

The following Spring, I realized it was just undone, that I wanted words from my boys since my girls had both been so impactful. They were not as spontaneous, both needed some time to consider which word.. But what they came up with was no less important… sweet son and I have spent time watching all the Marvel movies together and most days, somewhere along the way will repeat to each other, I love you, 3000. If you know Marvel, you know. And If you don’t…well, it will be some fun research for you.

Hubby picked the word, adored, a word that even after 22 years together, I still struggle to understand. Am I really worthy of his adoration? And what does it truly mean? And do I show him mine enough?

(Oldest wanted to pick her own word, because technically, ve’ahavta was my own choice. Because it was the season of beginning to look at colleges, she wanted, always home to remind me that “wherever I go, mom, you will always be my home.”

Back to my now favorite tattoo place, and there I was, with my neat little square. It has been about one year exactly of loving those reminders of Jesus, my loves and their own handwriting. There have been countless conversations about my square, (for lack of a better description) and the pure love that comes with each…

You think you know what’s coming, don’t you? It’s a little different than you think…

Remember that trip I took with hubby to Disney in February? One night, as we got settled into the bus to return to our resort, I noticed a woman with a beautiful tattoo all the way up her arm. I sat in my wheelchair, unaware that I was comparing her tattoo and my own lovely square, looking back and forth between us. I don’t think I really thought much more than, to be honest, that hers was pretty, I wondered what the story behind it was, and if I’d been within earshot, I would’ve asked.

Cast member unlocked my chair, wished us good night, thanks us for visiting; rolled me down the ramp. Hubby took over pushing and with the voice of the one who knows me as well as I know myself, said, “I saw you looking at that lady’s tattoo. I can see you adding to yours and having something similar.” I couldn’t see his face as we entered the resort, but I could feel his truth, love and his big smile. I was both dumbfounded and I felt entirely known, even though I hadn’t even thought of it myself….

We talked about it many times during the week in line at Disney, while we nibbled on Mickey pretzels and “plastic cheese” and as we noticed others’ tattoos. We talked about it when we got home, with the kids who were so excited about the idea…which again, surprised me.

My E began drawing my story in tattoo form, all the meaningful parts of me and the pillars of what makes me who I am. I love her artwork so very much so that process was such fun by itself. What came out of all it was the desire to share who I am in an outward way that ultimately gives glory to God; gratitude for individuality, for love, the love of family and being content exactly as I am. From the time of Hubby’s comment to the ultimate design, the process was so full of “us.” And it felt so right…

Off to visit JR and Michelle, then a few weeks wait. The timing was perfect though, as my appointment was the Friday before Mother’s Day and just one week before E’s graduation open house. It wasn’t until I sat in the chair, with JR set to go that I realized that this time would be very different than getting my words. I gulped, and we were off….

4 hours later, JR had the bones of the tattoo finished. It was absolutely right. I was in a bit of pain and so much joy as I looked down the first night…hubby was in awe, daughter had hung in supported me the whole time and I just felt incredibly strong. That is SUCH a rare feeling about ourselves, isn’t it? I felt like, YES! Here I am! Let me tell you about my Jesus, my story, my personhood.

The next day I returned to have JR put the finishing touches on my new sleeve, a part of me that now feels like it has always been there.

-Along with my square are the kids birthdays and our anniversary. Next is my anchor, a symbol of many things including my alma mater, my hope, and a few special others. Going clockwise is BOTH/AND; Michigan, a representation of the Wind (an element in which I always feel God’s presence and power) and half of a quote that I share with my oldest daughter. Te amo represents my kids commitment to becoming bilingual and their love. Coordinates for one of my favorite places, my bike (freedom of movement) and then my hero Mr. Rogers is represented with 143 and Mentionable Managable. Up on my bicep is a butterfly in a state of change, the picture for me of Psalm 13. There is so much wrapped up in that butterfly, my hospice work and memories, my Jesus and so much hope. Finally, a windmill and Mickey; Lastly is a favorite quote from Cinderella, one of those life quotes that has just become my regular.

I keep looking at it and smiling…I keep grinning, feeling very unexpected, badass and so content; almost willing people to ask about it so I can tell about any part in which Jesus IS the story.

I told my mom, “I know this is probably not your thing. But I am so thankful, that in all of this life, through all the work I’ve done, I know who and whose I am.” She hugged me tight and said, “I’m so glad.” Me too, Mama. Me too.

Thank you my Jesus, for the so many ways that YOU create beauty, artistry, story. Thank you that you make each of us with unique loves, interests and things that move us deeply. May we always give you the glory. May we be curious about those around us who are willing to share their stories and reach out to hear them. And help us to see you reflected in it all.

Both/And

Psalm 13

xoxo

What Disney has taught me about traumatic loss…

(Disney Part 2.)

I have long considered the things I learn from Disney. Some things fun, others silly, still others poignant, which is I think is the biggest draw for most people who return again and again. I know myself well enough to to know as well, that I can find meaning in almost everything, something that at 50, I’ve learned to love about myself. With my calling in life being family, relationships, following Jesus Christ and leaning into the counseling career God has brought me to, Disney is part of my learning and teaching every day.

I’m not sure how old I was when I saw Bambi the first time. I remember Bambi’s big, baby eyes, his mother’s kind and loving voice; the way the music took me on a musical journey from, “drips to drops,” storms and then back to the cozy thicket. The bond they shared through various seasons and then, the forlorn cries for his mother following panic and fear in the meadow. The truth from his father: “your mother can’t be with you anymore.”

As gut-wrenching as that scene will always be, Disney created such a beautiful picture (in 1942) about the circle of life, family bonds, love, joy, heartbreak, growth and around again. Without really saying words, Disney gave the image of Bambi persevering, even after the loss of his beloved mother. With still further trauma in a raging forest fire, there are further images of perseverance and finally, Bambi’s rise to adulthood and leadership.

In Old Yeller, 15 year old Travis is tasked with “adulthood,” in protecting his mother and brother on the prairie while his father is away. While the song is catchy and probably a memory itself, the story always grabbed my attention as a kid as well: the loyalty of a stray, the winning over of Travis’s heart, difficulties of family life and the bravery of Travis to euthanize his beloved dog when illness struck. The selflessness of that scene is stunning and brave.

What amazes me still, so many years after the production of these movies is how the creators struck a balance between the realities of life, death and the sense of natural progress toward health, perseverance and continued life. Though I was young when I saw these the first time and I didn’t have the awareness that I have now, I look back at all of the lessons in so many Disney movies with wonder.

When The Lion King was released in 1994, I was one year away from college graduation. I was in the thick of studying to become a social worker, a true Disney fan and I had experienced my first traumatic loss barely a year before. I did not realize how I was still in the throes of grief, or how this poignant movie would change me for the good. From the first strains of the first song, (if you know what I mean, you KNOW…) The Lion King was majestic. The animation had come such a long way during the renaissance of the 80’s and 90’s, as well as the heartfelt music. I’ve long heard that the Broadway production of the Lion King is “a spiritual experience” as well.

As beautiful as it began, Disney brought fans to the height of wonder, down to the true and intentional malicious nature of Scar, quite quickly. It depicted the bond between King Mufasa and Simba, father and son – teaching, guiding, discipling and laughing in such a natural and beautiful way that when Mufasa was brutally murdered just a few short minutes later, I wonder if audiences even knew what had hit them.

I remember sitting in the theater with college friends, in tears, then sobs as Simba tiptoed near his father’s body after the stampede. My heart even then, wondered how children endure such loss of parents when they are so young. I resonated with losing someone who you desperately want back.

Disney depicted Simba’s grief journey in again, such stunning and natural ways, the shock, bargaining, and avoidance; deep sadness, the reconciling we all do in whatever our process of grief. One of my favorite scenes, STILL, is the scene in which Simba runs, believing he will somehow find his father. Instead, is the reality when sees only his own reflection, fights frustration, then hears his father’s voice, “Remember who you are….”

Over the course of time and nearly 30 years of experience in counseling including grief and loss, end-of-life care and trauma, I have learned how shaken we can become while enduring loss. This certainly has varying degrees, depending on each individual, circumstances surrounding the loss and how we process. I often spend time normalizing spiritual conversations and the difficulties of who we are, why or the purpose for a loss “happening to us.”

Mufasa’s voice, urging Simba to remember “who you are,” for me, has some of the tone I hear in the Book of Job. After losing all his possessions, family, health – Job is struggling, grieving and just cannot understand. Though Job wrestles, God does not answer all of his “WHY’s??” God instead reminds Job (and us) that it is HE who knows the number of our days, the sovereignty he possesses and the way he works all things together for good. He asks us to remember, (even in the wrestling, profound loss, realigning after a loss or even being shaken to our core,) that WE ARE HIS. Remember…

When the movie UP arrived in theaters, I had two small kids who kept me hoping! I might have been in a bit of a fog with a 4 and 2 year old. We rented the DVD, because in 2009, that was still a thing and admittedly, we missed this one in the theater. We settled in for family movie night for what I thought was going to be something else entirely. (Like I said, probably toddler-mom-brain-fog.) While we munched popcorn and I had the kids snuggled in my lap, I found the tears falling quickly in the first 12 minute montage. The life of Carl and Ellie gave me a glimpse again, of the journeys I encounter with many clients. How the animators captured such deep love in the face of Carl, the hardness that grief can produce, the way we sometimes find ourselves unrecognizable AND the hope that can be found in others throughout the loss of loved ones, can only be explained by assuming that the animators themselves MUST HAVE endured profound loss themselves.

Another amazing truth that UP conveys, is the normalcy of continued relationship with a person who has died. I know this may be a little tricky, so keep reading, please!

As I walked through that first loss of my Gram, I had a dear friend and mentor at Hope College who spent time with me, normalizing my shock, understanding my many emotions and explaining grief in ways that helped me heal. One day he told me how he had seen a client who had set the table for themselves and their spouse for nearly two years after the loss of their spouse. I was surprised at the way Jim talked about this and then explained, “that might be a little on the extreme side of grief, but we continue to have relationship with our person even after they’ve died.” It brought tremendous comfort to me, as I was furious that people were referring to my Gram as “she was…” almost instantly. Jim further explained that the relationship means talking about them, remembering, telling the stories, acclimating the loss into our “new normal.”

There are cases, (often exaggerated on tv or movies) that involve people suffering mental illness and believing their person is still alive and with them. This is not what I am referring to regarding continued relationship. If you are someone struggling to decipher between the two in the midst of loss, please seek a professional grief therapist to support you. Grief is such hard work….

The relationship that Carl has with Ellie even after her death feels healthy, though still gut-wrenching in its physical loss. But he also carries her with him and ultimately learns how to channel that into a profound relationship with Russell. I so love how she is carried on in Carl’s present, as I have seen countless others do as well.

One last example….

In Frozen 2, we find Anna, desperate to protect the relationship that has evolved with her sister Elsa after enduring a tragic loss of their parents and even lonelier grief process for them both in the first Frozen. As Elsa now chooses to follow her own path, Anna finds herself again enduring heartbreak. First, the loss of Olaf, her trusted friend, then also believing Elsa has perished. Below is a clip of the haunting song she sings, willing herself toward, “the next right thing.” It is profound to me, a mirror of the many hours I have listened to those left breathless following a loss. I’ve heard from many clients how it is “exactly right” in describing the pain, profound heartbreak and will it requires to keep going after one we love deeply has died.

For me, that “next right thing,” the ability to keep going in the midst of loss, are many of our hardest moments – unthinkable really. Also for me, is the reality that God is the only way anyone is able to take another step. He is the voice inside that somehow compels us to get up, take another step, take another breath and continue one after another. That is not to force God’s provision on any, rather, it is simply my truth.

Whether you are rolling eyes about my “deep Disney connections,” have thought some of these yourself, find yourself facing grief or are just trying to summon the courage to take another breath, let me remind you of just a couple things:

  1. Love will in some way, at least on this side of heaven, involve loss. I have heard the quote, “grief is the cost of great love.” If we want to experience deep, connected love, then we are at risk of great heartbreak. Jesus also tells us though, “33 I have told you all this so that you may have peace in me. Here on earth you will have many trials and sorrows. But take heart, because I have overcome the world.” John 16:33 God promises that this pain will not have the last word for those who love and seek him. (Praise be to God!)
  2. God created us with the ability to persevere, because he is WITH US. (Not just in the good, but in the unthinkably hard.)
  3. Grief is a marathon, not a sprint. Mourning is grief that is actively moving in some direction. Remember who you are, whose you are, while in the messy, crazy-making process. God knows the days, the moments, the breaths that are so hard to take…
  4. “When you pass through the waters,
        I will be with you;
    and when you pass through the rivers,
        they will not sweep over you.
    When you walk through the fire,
        you will not be burned;
        the flames will not set you ablaze.” Isaiah 43:2
  5. Lean on friends, family, your roots and if you are willing and able, the God of the Universe who loves you deeply. Allow others to carry you, whether that is a grief therapist, a friend who opens the door and wipes your tears after you’ve held things together for awhile. A pastor, or support group. You were never meant to endure alone…
  6. Stay in today, or even in this one hour. One step, then another. Take a bite of something, even if you are not hungry. A sip of tea, one phone call or a shower. One thing at a time. You see, one thing can add up to another and another and another. In time, Spring will come again, you may breathe just a bit easier and you will be able to carry your loved one with you into whatever comes next.

I am praying for you as you grieve a loss of many kinds. You are not alone.

Both/And

xoxo

What we can learn from Ariel, Ursula, shipwrecks, grief and Jesus.

(Part 1 – Disney series)

Can I start very candidly?

I hardly know where to start when I think about writing about Disney, Disney movies and how these come together in my day to day…and yet, that’s probably because for me, it all blends together – my interests, my work, family and Jesus (rarely in that order).

I seem to talk about all of them together in whatever way or however I am speaking, so I suppose writing about them all together will not be that different.

I wanted to start by telling you, this fascination and joy with Disney probably began with our family trip (see last post) and then my first Disney movie at age 8. I don’t remember a ton of movies from my childhood, but goodness, for some reason my first was an instant favorite. We went to see the Fox and the Hound in 1981 and I was an fan! An orphaned fox, the cutest pup and all the emotions building to their unlikely friendship. I went home and named my own stuffed fox and dog, “Todd and Copper,” replaying their adventures all over our house. Many of the Disney classics had been released long before and most were still in the Disney “vault” as I grew up, but the seeds of curiosity, love and story had been firmly planted in my being.

I remember being absolutely horrified at Bambi, the very idea of little Bambi being orphaned was unthinkable to my sensitive heart. Still, the joy of Thumper and Flower made me smile and this movie too was cataloged as beautiful in my brain. We watched some others as I grew up – The Parent Trap, Swiss Family Robinson…I loved them all. I couldn’t get enough. The Wonderful World of Disney was on Sunday nights, always a staple along with a huge bowl of popcorn. FOND memories….

Around the beginning of 9th grade, we had moved to our current city, changed schools and church. We began attending Fellowship and met friends all around us. I also got a job at a local kids’ book store, called, “Pooh’s Corner.” My manager, Lisa, had befriended me a couple years before as I browsed the original, “Pooh’s Corner bookstore” at a mall about 45 minutes from our house. My love for Disney continued, along with a developing love for books. Lisa was instrumental in my self esteem, my own acceptance as she modeled those same things in how she treated me.

Around that same time, the Disney Studios released, “The Little Mermaid.” My cousin Pam took me to see it and I was thunderstruck…I was at an age where I believed in things like “love at first sight,” was completely enamored with auburn hair (this is an upcoming blog post, I am sure) and LOVED the music. I played the cassette over our speaker system at Pooh’s every time I could, belted it out in my room when that cassette was released for purchase and quickly deemed Ariel, “the best Disney princess, EVER.”

The release of The Little Mermaid is viewed by many historians as the beginning of “The Disney Renaissance era,” from 1989-1999. Though I am not by any stretch, as knowledgeable as these historians, I can tell you that for me, this era solidified my love, fascination and identity related to “loving Disney.” In my mind, I related to Ariel. I believed that I “should have been born with red hair,” also naively hoped that “my prince would show up, poof, we’d fall in love and live with Jesus, happily ever after.”

One of the biggest connections I felt though was pure freedom and a sense of lightness when I could get in someone’s pool. (Maybe this is how mermaids feel?) It was a spot of freedom from the complications of cerebral palsy. I DREAMED of life IN the water. I thought she was so brave (and a bit crazy) to defy her father, seek her own path and oh, her voice….

There are a lot of lessons that I learned from Ariel, her friends and family, some I continue to learn into my adulthood and add to with the release of the live-action version of The Little Mermaid last year. Here are a few, in no particular order.

  1. Don’t be afraid to be a “help.” Be safe, yes, but also quick to assist as needs arise.
  2. Be curious – “whoozits and whatzits galore, you want thingamabobs? I got 20…” I think Ariel (both) gave a great vison of leaning into the the things that bring us awe and curiosity. For me, this translates to the ways God has created each of us with interests, passions and curiosities, the nudging of the Holy Spirit to become those God-gifted versions of ourselves.
  3. Be aware of everything around you. As I grew up, I became more and more aware of the parts of Ariel that concerned me. As I often do with movies, I find myself thinking or speaking out loud, “why are you going in there, down there, through there, etc?! Don’t you see (or FEEL) the danger??” I am well aware that if Ariel had listened to the warning signs that screamed as she approached Ursula, the movie might have flopped, but I do think it’s a great talking point to listen, look and pay attention, especially, if something “looks and sounds too good to be true, it just may be.”
  4. Following your heart in the moment may bring more trouble than “a dream come true.” (and we all want “the dream come true.”
  5. Always try to be open-minded and non-judgmental about others. I loved how the current Ariel was brave in saying to her father, “not all humans are bad, father.” He assumed because a human had harmed his wife, that all “are barbarians.” I think both movies did this well, but the more recent Little Mermaid was much more pointed and articulated about this truth.

There are so many to name…including, fish are friends, not food!” Even so, the one that came to me out of the blue, very early in my career has to do with Ursula, shipwrecks and grief.

Do you remember the scene after Ursula secures the trident and grows to a towering monster of the sea? She begins to swirl the water where Eric and Ariel swim, creating a whirlpool from the sea floor up to the surface. As she swirls, long buried shipwrecks begin to rise to the top of the water, bobbing and swaying in the frothy, tumultuous water.

While an intern at Hospice, it occurred to me how an immediate loss was much like Ursula in that scene. Throughout my career, that analogy has become even clearer, especially with a traumatic loss. Subsequently, our past losses (shipwrecks) also rise to the surface as we move through current loss. Over time, this analogy has normalized a lot of loss, trauma and connection. The image allows me to give a framework to how losses, both current and past, connect and impact so many parts of us as we tend to the unwanted path of grief. And though this (probably) was not Disney’s meaning behind that scene with Ursula, shipwrecks and crashing waves, it has been the truest image of grief that I have ever seen.

The newest version of the Little Mermaid gives us deeper messages of acceptance, explanation, strength and grief: The crashing of hope, differences in beliefs, needs and desires; the unexplained loss of many and finally, a deeper understanding allows us a new (again) perspective of grief.

I am grateful for the creativity of animators who create images that give birth to ideas, deeper meaning and understanding. It is a miraculous moment when a therapist gets to assist in those moments of clear understanding and deeper truths inside of us. That image, in my experience, has provided many with a way of understanding and explaining what the magnitude of grief can feel like for some. It is then, that we get to discuss the magnitude of hope, resilience, strength and hope. Sometimes, there are discussions about how Jesus calms the storm, thus settling the water, the size of grief and assists with processing past trauma and loss right beside us.

When it is hard to find helpful words, hope sometimes becomes clear in a picture. Sometimes that picture speaks a thousand words. I pray that your pictures are full of Jesus’s heart and the hope of him, always. I pray for purpose that feeds the creativity that we were born with. And if you are facing Ursula, (the current grief) and shipwrecks (past losses, dreams unrealized, or other past pain), you are not alone. Lean into your support system, reach out for help, know that the God of heaven and earth is with and for you…always.

Psalm 89:8-9

O Lord God of hosts,
    who is mighty as you are, O Lord,
    with your faithfulness all around you?
You rule the raging of the sea;
    when its waves rise, you still them.

both/and

xoxo

Even better than Disney?

(a series on ways that for me, Disney, Jesus and therapy all fit together…)

I took a deep, and I do mean, DEEP breath…the kind that I can feel all the way through my torso. The kind…that would make Mr. B, my choir teacher, so very proud. The plane was landing, I peered out the small window and saw palm trees swaying gently in the sunshine-filled sky, a breeze lulling them into movement, just a bit….

My love and I were there to celebrate our 20th wedding anniversary, my 50th birthday and anything else we could possibly celebrate. And yes, THERE was in fact, Walt Disney World. If you know us, then you are probably NOT surprised. If you don’t, well, it is time for a bit of my backstory and my love of Disney, Mickey, the love of all things good and more of Jesus.

I think I was about 5 years old the first time we visited Disney World. My memories are vivid, though few are actually mine. Many have been solidified by pictures of that trip. I clearly remember our stay at the Polynesian, getting to “drive the monorail,” being both scared and mesmerized, developing vivid memories of The Pirates of the Caribbean – arriving in the middle of a battle between the pirate ships, the musky, yet inviting smell of the water, looking up from the boat to see a pirate’s VERY hairy leg hanging off the stone wall above and “YO HO, YO HO….” that I would never forget. The Haunted Mansion – the “ghosts,” an elegant, yet spooky ballroom and organ, graveyards and a terrified man and his shivering dog. Yes, at 5, I was scared at some points and I was also completely smitten with the magic. WDW was indeed a Fantasy land to me. Parades, characters, music, smells and wonder.

My most vivid memories were those of meeting Mickey Mouse. I just loved him. I loved his smile, happiness and was thrilled when I got my own turn to visit with him. We went for a character breakfast at the Crystal Palace, but none held a candle to sweet Mickey for me.

Picking a souvenir was SO HARD! It was such a big decision and I could not decide….my dad still talks about how many gift shops we visited and how my sister and I had to go back to many. Still, I finally settled on a stuffed Mickey and oh goodness, did I love the stuffing out of that one. Once we got home, I was so distraught that I had split Mickey and Minnie up, that my parents had some good family friends pick up the matching Minnie on their trip a few weeks later. That surprise on Christmas was unforgettable.

I can still feel this happiness…
So well-loved. ❤️

We visited again soon after adopting my younger brother, about 3 years later. My brother was searching for Mickey on the runway as the plane landed. I remember the Poly again, the stuffed Donald Duck he treasured and the love of being there once again.

Pure joy! (And what was I doing with my hair?)

There have been a number of trips over the course of my life, the ones with my parents and siblings, the one in college when I had an opportunity to go along with a family I babysat for, another with my best friend, my sister and her husband and then the trips with my husband and eventually, our beloved kids. Throughout my life, my love for Disney, Mickey and Disney World has remained constant. It has been part of my identity for as long as I can remember. I was “Aunt Mickey Mouse” to differentiate me from another “Aunt Stacy” at Camp Geneva and I think, lovingly adopted Mickey and gang as my team. What began for me as a kid (and probably the obligation my parents and so many others feel to let their kids experience Disney as least once, thank you mom and dad!!) has become a true love with a place, a feeling and something I still have difficulty putting an accurate description to.

From my youth, my love for both Disney and Jesus have had defining moments in who I am. Obviously, these are not equal. But, on this trip, I began to see how present my experience of Jesus is, everywhere, even at Disney.

From being a kid truly enamored with the parks, the characters and Mickey himself to an adult Disney lover, researcher and fan for many reasons, it has become so much more than childhood infatuation. It is an awareness of goodness, joy and a sense of returning to those feelings of youth. It is so much more for many, evidenced by increasing social media accounts, blogs and an entire art form that has become related to all things Disney. Our recent trip (just husband and I), had me really listening, watching and becoming aware of a much bigger picture of Disney than most would assume….

There is a sense there, of “all being right with the world – a suspension of “normal stress,” even though it gets traded for the less talked about stress that is, “high Disney expectations that so often go unmet.” Still, Disney’s numbers do not lie. Since its’ opening on October 1, 1971, it is estimated that an average of 58 million visit yearly. For us, not yearly, but as often as possible with a busy life, kids activities, jobs, etc.

Before I write another sentence, let me tell you a couple important details. 1) I am a very glass-half-full person. Not in an avoidant or Pollyanna way, but in a way that continues to evolve as I age. I choose to believe the good. I love the perspective (and sometimes challenge) of seeing the good when it seems to be hidden.) AND…I can sit in the hard, negative or downright difficult. Both/And has become a way of life for me. It is not trite. It is for me, the only way to approach almost everything because nearly everything is multi-faceted. 2) I am very aware of the underbelly that is present with Disney and most other things. It is commercialized, at its core, a business to make money and yes, extremely expensive. I am not avoidant of that awareness either. I again, just choose the good, the joy and positive more than the negative….

That said….

Husband and I arrived to celebrate a few important milestones, to refresh, to be together, and to PLAY at the parks. We appreciate the quality at the resorts, the food and the now familiar joy of being on Disney property. I am not sure how, but they work VERY hard to ensure the cast members are kind, accommodating and will go an extra 10 miles if needed to provide each guest with a magical stay, no matter what. We have experienced this over and over again.

This time, though, I was acutely aware of kindness, even more than fantastic customer service.

This time, around, I chose to use a wheelchair, which is not my everyday experience. I typically use a wheelchair when there are long distances and/or uneven terrain.

Such a beautiful memory. ❤️
My longtime friend.

One of the beautiful things about Disney is their awareness and care for those with disabilities. Every time we rolled up to an attraction, big or small, a cast member had made eye contact along with a smile, begun clearing the way, unlatching lane lines or already directing us to a specified accessible entrance, with a lot of care and acceptance. Each conveyed a seemingly natural sense of inclusion, almost as if they didn’t even realize they were doing so. Throughout rides, shows or even getting to our resort, cast members were ready with an additional arm to support, encouragement to “take all the time you need,” or simple issues related to dignity. This meant more to me than I can convey.

I follow many Disney sites and forums, therefore hearing a lot of different experiences. It is my joy to live vicariously through others experiences, especially because the reality of going to WDW as often as I’d like is impossible.

Recently, I read a story, how a single mom was determined to bring her kids to Disney World even though she herself struggled with an anxiety disorder, panic attacks, and acute claustrophobia. As she entered a ride vehicle, her panic set in, and she knew she needed to get off the ride. A cast member saw her get on, then quickly get off with her kids in tow. The CM gently guided her another direction past the line cue, brought her to an extra ride vehicle, then took time to let her practice getting in and out. The cast member then went a further extra mile and offered to go on the ride with her. She (the CM) pointed out the hidden exits throughout the ride in order to help her keep the claustrophobia at bay, as well as hidden ride details and a few distractions. As this brave, strong Mom relayed the story in the forum, you could almost hear her tears of appreciation and changed perspective, because a cast member was so infinitely kind.

Another recent story told of another single mom, bringing her sweet daughter, who was in her last few weeks of life due to a brain tumor. The mom explained how when they finally got their turn to see Anna and Elsa, she told Elsa about her daughter’s joy and devotion. The cast member assigned to help then closed the line, proceeded to assist with a bigger photo shoot just for this mom and daughter. The mom shared that her daughter had since passed away, but these pictures meant so very much to her in the gut-wrenching throes of grief. I am not sure if either cast member is on that forum or if they are aware of the life-changing things that they provided for these two exceptionally brave women and their kids.

My experiences are not nearly that profound. And they were beautiful…

As we boarded Soarin’, I was seated next to a woman who was terrified of heights. During our preflight safety check, she was going back and forth in fear, “I need to get off” then her grown daughters asked her to stay. “Is it really high?” she asked husband and I with wide, fear-filled eyes. Husband was so reassuring to her, explained the mechanics. “I think you will be sorry if you don’t try” he gently told her and I was so proud of him. Still as the ride began, her body went rigid next to me. “Oh SHIT,” she exclaimed, eyes closed tightly. I leaned over, covered her white-knuckled hand with mine. “If you want to hold my hand you can..” I whispered. Then I began to quietly narrate the scenery before us. “Now we are dipping low over a river, near some kayaks…” she opened her eyes just a bit, whispered, “ok, I like this…

Then we swooped up, over a mountain, said hello to a hang glider on the screen, then soared over a grove of orange trees. Smells of fresh citrus filled our nostrils. Then is was ocean waves, dessert wind gusts and the streets of Disneyland on the screen…all the while I whispered, she gripped my hand and we settled back on the floor. She smiled at me, her eyes giving all her thanks. I squeezed her hand and softly encouraged her to “find a good margarita if you like them.” “Oh, I will!!” She was gone in a flash. I was thankful to have been in that seat, at THAT moment.

My own experiences, held their own life-changing beauty. I sat in that wheelchair as my husband selflessly pushed, helped and purely loved me for many many miles in the parks. Countless times, cast members were right there to assist if we needed it. And then there were a few meetings with Mickey himself.

You may find it silly that going to get my picture with Mickey Mouse as a 50 year old woman was important to me. That’s entirely OK. But watching the cast members care, listening to the joy of each person who got to walk into any characters presence and hearing how much it meant to so many based on the lines to get there, tells me that I’m not the only one.

By the time it was our turn, husband and I had already established a routine. As the people ahead were getting their pictures, we pushed the wheelchair off to the side and then made work of getting up to visit Mickey & Minnie ( or whomever.)

As soon as the previous group had left the queue, Mickey turned his attention to me. There was such a gentleness and care as Mickey and Minnie both would take my hand and walk me over to the center spot. There was love and support that came through from the heart behind that costume. It was palpable and happened time and time and time again.

Mickey and Minnie, they were so kind!

My adult brain is very aware of what is happening with a person behind the costume, but with each picture was the awareness that for at least 40 years this character has meant a lot to me. 

One of my favorite quotes from Maya Angelou says, ” I’ve learned that people will forget what you said, people will forget what you did, but people will never forget how you made them feel.”

Disney is SO masterful at capturing the feelings - the music, the joy, the familiar, the wonder, (even the smells!) that bring us all back to a place we remember, if not in our actual memory, than in a deep, primal part of our brains. As I watched all those people in the park, seeking this feeling, enjoying the stability and sameness that Disney somehow manages, I was aware again, how we are all looking for the same thing in real life. We want things to be unchanging. We want joy and goodness. We want to be seen. We are all moved by kindness. We want wonder…we want to remember how all of it feels, at least I think so.

Yes, a lot of that can be found at Disney, not all the .time though. Husband and I giggled quite a few times with empathy for young parents who just wanted that sweet picture with their child and Buzz Lightyear, with Minnie or with a their favorite snack for their Instagram. And yet, as it happens, kids (and adults) get overstimulated, tired of waiting, hungry or sometimes, something we just don’t know. We all struggle with something, even at Walt Disney World.

It would be so easy for me to make Disney some sort of idol, even inadvertently. While I love so many things about The Walt Disney Company: the atmosphere, imagination and overall goodness found in the ability to experience a “fantasy” while on vacation, it is just that, a means to get away from “real life.” While Disney allows me (and so many others) to chase the feeling that we want to hold on to forever, there is something so much bigger.

Nothing in my life is separate from or more important than Jesus Christ. While Disney is my “joy,” a place and ideas where I find sheer delight, it always ends, at least for that vacation.

Jesus is unchanging, forever and ever. Romans 8: 38-39 says, “For I am convinced that neither death, nor life, nor angels, nor principalities, nor things present, nor things to come, nor powers, nor height, nor depth, nor any other created thing, will be able to separate us from the love of God, which is in Christ Jesus our Lord.”

While it is a fantastic vacation at Disney and we absolutely CAN find moments of experiences that reflect all the good, kind, joyful characteristics of Jesus EVERYWHERE, the God of Heaven and Earth IS all of those things and SO MUCH MORE! He is LOVE. He is LIGHT. He is PERFECT. He is so much more than our best experiences, even when we feel the characteristics in small amounts everywhere.

We experienced all kinds love and goodness while on vacation. As with so many people and places in life, there are so many reflections of Jesus: in our families and most intimate friendships, relationships, nature, artwork, creativity, skills, hobbies and abilities. It is ALL created to reflect and glorify the creator, even how we experience feelings, people and joy at Disney. I can experience a reflection of my Savior in everything, and I do. There is never a shortage of things to be in awe of. And nothing deserves my awe, my love and devotion more than He does. NOTHING compares to the journey and relationship with the Lord Jesus Christ.

In speaking with my friend and pastor, Ross, he told me about the Biblical idea of “Kal Vehomer.” In his words, “It’s a phrase that literally means “light & heavy” and it’s an argument that moves from the lesser to the greater.  It’s usually translated as “how much more,”  Jesus uses it when he talks about parents knowing how to give good gifts…and so “how much more” our Heavenly Father does too.” He went on to say, ” if Disney knows how to see & honor & love people — and to create an atmosphere of goodness — how much more does Jesus see and love and how much more does God know how to create a world saturated with goodness in the kingdom come.” I am so appreciative of this dear friend’s perspective, editing help and wisdom. I couldn’t have said this better myself. It is EXACTLY what I was hoping to say.

My love, thank you for showing me Jesus in all the ways as we spent this time together. Your care, joy and sacrifice on my behalf, are not unnoticed. You astound me every day. I am humbled to be given your love for this lifetime.

Every day with you is a gift.

To each and every cast member who goes above and beyond, who work diligently to provide dignity, time, support and happiness to those of us who come and take this place for granted. Your efforts don’t go unnoticed either.

My Jesus, thank you for the sunshine and swaying palm trees. Thank you for opportunities to go and experience the magnificent artistry of Imagineers, creativity, visual and audible wonders of music, shows, food, fireworks and so much more. Your attention to detail so that we may experience joy is so, so extravagant. Thank you for the laughter of kids and adults alike, the way you are the one who has created wonder at all. Thank you that you are the true author of our stories, your presence in the good and evil, the deep down fear, battles, redemption and love. I pray that through all things, even Disney, you continue to use it to show us who you are.

Both/And

xoxo

1 Corinthians 13:4-8

PS I am hoping in the next few posts to write about some of the common analogies that I use in counseling using some of the poignant moments Disney has created that reflect to me humanity, Jesus and therapy all together…let’s see how it goes!

Longing for bravery in the new year and a few lessons we can learn from Elsa…

The heaviness he shared felt nothing short of oppressive…a 100 pound weight blanket that paralyzed in every way. He shared all the methods and advice he’d been given over a lifetime of fighting and I do mean, FIGHTING depression. From all the adages that well-meaning friends, family and professionals advise: “eat healthy, exercise, journal, pay attention to negative thoughts, mindfulness, prayer, meditation, yoga…” There was also deeper advice, involving medication, invasive brain treatment and years of therapy….

My heart breaks as I listen intently. I both BELIEVE in ALL of that true and well- researched advice and I am again understanding how depression can feel, paralyzing a person’s ability to help themselves. All I can do in these breathtakingly sad and difficult moments is be near: witness and empathize and validate the sheer anguish that IS everyday living with depression.

A video popped up on my feed yesterday in which Kate Bowler was interviewing Lisa Damour. The title of the video said, “How saying, that sucks, I’m sorry has spiritual power. (See link below!) https://youtu.be/mHQGCNeBx7k?si=DwOX89K_BwW5Iy7S

Don’t we all just want someone to be WITH US when something really hurts, agonizes or aggravates?

It is still, after 23 years in the field of counseling, an amazing moment when I am allowed to sit with clients in the hardest, most painful parts of life. The moment when I remind myself to stay silent and after the right pause in the telling of one’s story, I can just utter, “That must be so hard, I am so sorry,” or, “that sucks…” It IS spiritual. I can physically see sighs of relief, shoulders loosen or facial expressions ease as I listen and acknowledge each person’s lived experience….

Losses that feel so final that one doesn’t know if they can gather the strength to take another breath. A cancer diagnosis that in a swoop, changes an entire families’ future plans or years of infertility, treatments and silent suffering amidst a world of women who seem to easily get pregnant; and the slow, cruel loss of a lifetime of dreams about motherhood. These are just a few this year, that I have the honor of being with.

To be entirely honest, I am often torn between the helplessness so many feel, the responsibility in my calling and the sheer audacity of hope that I am allowed to witness each and every day.

My grandfather died nearly 30 years ago, about two years after my grandma. Both died very suddenly and I don’t think I had a clue what grief was, mercifully, until then. I know that I had not fully processed the loss of Gram, when I received a phone call while at work (my parents were on vacation) that my Aunt had found Grandpa at his home after what appeared to be a stroke.

The days and weeks to follow were a blur. Somewhere in those new, raw and unreal days of loss, I heard a song lyric about, wishing you a brave new year. I clung to that phrase, not at all sure how to be brave and hoping it was possible, to indeed have, a brave new year.

That phrase has stayed with me ever since….both the undeniable, unstoppable hope in that wish and the awareness, deeper over time how monumentally hard it is to feel, be or hope to be brave. From the time I heard that lyric to the present is a journey from finding my own bravery to helping others find it also.

What comes to mind with the word, brave? I threw out a small poll and here are some of the responses I received:

“Bravery and courage are interchangeable to me. It’s being fearful of stepping forward, but doing it despite fear and WITH the fear.

But the thing is, the fear you started the steps with, never makes it to the end point with you.”

-JB

Brave is an adjective. To be brave is to do or be something that you never believed possible, to beat the odds that are stacked against you; to continue growing amidst challenges and obstacles, to choose to get up in the morning when it seems there’s nothing to even wake up for, to make it through the day, to forgive, to do all the things that in your mind can’t be done. Bravery and faith are intertwined, as they are both taking the first step, even when you can’t see the whole staircase.” -EM

To Overcome, not all heroes wear capes.” – MM

Fear because usually when you are brave you are doing something that scares you or gives you fear” -EWM

For me, there are many that come to mind. There is the Disney movie starring feisty Merida, of course. There are so many inspiring stories from all over social media. There are those who currently, as I write, are somehow bravely surviving in war-torn parts of the Middle East and beyond. I think of a pastor I began listening to 2 years ago who has recently had a recurrence of cancer in his brain. I think of how Amy Purdy, who inspires me, starting with her appearances on Dancing with the Stars.

But do you know what else? My perspective of brave has shifted. The images above ARE so brave…and so is the family who is advocating for mental health awareness following the unexpected death by suicide of a beloved friend, daughter, son or parent. Those who are quietly coming to sessions, learning to feel all the hard feelings and sharing their story safely.

Brave IS the person who DOESN’T give in to the temptation to relieve their pain by attempting suicide. Brave IS showing up day after day in the midst of bullying, holding on to your own beliefs and not giving into the ever-present lies of worthlessness. Brave IS saying, “I am not going to drink, smoke or hurt myself” when it seems so much simpler to do so to ease pain. Brave is every day -choices to live out faith, beliefs and boundaries when there is so much pushback…

Brave is continuing to fight whatever fight you are fighting: a minute, hour, day, week, month or year at a time. Brave is listening to that strong voice inside you that guides you to the next right thing. Maybe that means relinquishing something we love dearly this year, dream or part of because you know it is right. (By the way, I believe, that the right thing is rarely the easy thing and that in itself is brave. Maybe that is choosing your own need or right thing amidst a sea of opinions, advice and pressure from all around.

It is BRAVE to change career paths amidst choices and already laid paths leading to a “safe” spot, but the gnawing inside you is unable to forget a different opportunity or idea.

Have you watched Frozen 2? Elsa, Anna, Kristoff and friends are busy in what seems the “happy ever after” following Frozen. Yet, Elsa is stirred by an unknown, beckoning voice. She tries so hard to ignore the voice, yet, in, Into the Unknown, she cannot not hear it. (Link to the song here. https://youtu.be/l1uoTMkhUiE?si=oP-FUbE-5jcwVLy9 )

You can hear her internal struggle between both wanting to be content and afraid to let people down or change and then…the brave, heart-swelling moments of finding herself and her truth. Later, as she comes to a watershed moment in her quest to understand the calling – she is earnest, passionate and brave in seeking.

Maybe you agree or don’t, but to me, Show Yourself (https://youtu.be/md7dK5-qvHc?si=oUicMlnS5TMG5wFN) is a picture of embracing the Holy Spirit in some ways. The brave, brave effort of seeking truth and the singular drive toward hope is astounding.

Maybe our job with bravery is to see it in all things and understand that it really is breath-taking. Getting up in the morning for some, is the BRAVEST thing. Believing in yourself, so brave. Praying and holding on…I believe all of heaven is moved in this brave, holy effort.

Maybe…just maybe, we need to slow ourselves, offer so much more tenderness and earnestly seek the ways we and others around us are profoundly brave in this next year. Change IS brave. Big and so small. Hope is brave, always. Trying, is so brave! Surrender and tenacity and when we need each, is ridiculously brave.

Give yourself permission to change the way you experience brave this year. Don’t buy into the January hype that may say the only way to success is weight-loss, new goals and resolutions. Try Softer, as Aundi Kobler’s book says. (If you need a beautiful read, that one is it!) Kinder, softer slower.

Bravery is all around you. I believe in you and I know and believe in who Jesus is. Always.

1 Cor. 16:13

The weary world rejoices

Candles flicker, faces glow…. O Holy Night.

I let my tears spill from my eyes without wiping them away as the Hallelujah swells – both tears of sadness, remembering how it was so hard to sing at the funerals of two beloved grandparents and tears due to the pure holiness of standing in this sanctuary on THIS Christmas Eve. Funerals and majesty, two reasons we would say hallelujah in the first place.

I sit next to my son on one side, my husband, and the other, (the girls and my parents on either side of them,) knowing the family behind me is celebrating a new engagement. Families in front of me and all around, generations of growth, hope and change.

Christmas Eve together: the moments of taking pictures including our three dogs, that bring both laughter and preserving the moment and the frustration of trying to get the picture at all. Then we were off to one side of the family for Christmas, blessings of being cared for by my in-laws and gratitude for being loved.

We arrived for a candlelight service at our church that is still new to us and yet familiar. After attending church here as a teen, then another for nearly 25 years of my adult life, God brought us back here, post-COVID.

Worship this night led us to the very love of Jesus embodied in a vulnerable, helpless baby. Our lovely and talented worship leader encouraged us to think about the service as if it was the first or last time we would hear the story of Jesus Christ’s birth. What would be different, what would be new or what would we feel?

Oh Jesus, how could you, for me? How could you subject yourself to it ALL? Knowing and not knowing as a babe, knowing and teaching as a teen, as a rabbi, a sacrifice and ultimately as a Savior. How could you for us ALL? Can we worship you or thank you enough? Can we possibly love you to make it all worth it?

These were my thoughts, as I felt all around slip away and was just present with my Jesus, Lord and Savior. I can’t do, say, or love you well enough. I truly cannot….

But I can stand here, surrendered to the holiness of Christmas, allowing my heart to hear it new, to see you in a different light and share the love you have lavishly given so freely. I can stand here, still missing my beloved people who are with you already. I trust that your word is true.

Home after the service, the 5 of us. I relish these moments of us, the ones I feel slipping away like sand on a shore…the 18 year old just ready, talking more and more of “going to school.” My other two growing and changing as well… but for now she and we are here…the sparkle of Christmas lights, the arrival of friends who are family to share a hug and tea ring, a time honored tradition that brings again the pang of loss and the hope of heaven. The loss of this dear sister’s dad was a teacher of grief in my 20’s. Love tends to honor loss and hope so often, if not always. It is a difficult and deeply trusting both/and, on the daily.

Then is one of my favorite things of all… the giving of gifts to those I love. I often wish for a million dollars to be able to dole it out in all the best ways.

This year included Legos for my love and my son, their favorite cloths brands, sweet and meaningful jewelry, stuffed animals, books, electronics and favorite candy. The pure joy for us as their parents WAS the joy, the gratitude and the moments that THEY recognized just for a moment, how known and seen, loved and cherished they are. The stuff is simply a mechanism to show them love, care and unconditional presence to who they are.

I also received so much love in the form of their thoughtful and beautiful gifts: a handmaid piece of pottery, jewelry of sentiment and symbolism, soft socks and thoughts of my Gram; a candle “that smells perfect like you, Mom” and still more love than I could write. My love outdid himself, the sheer surprise of a recumbent bike he crafted out of metal, and tickets to see Pink in the Future! (If you are wondering why that is in bold, please see my last post!) I could not have been more surprised or felt more cherished. Not because of the gift, because love IS the gift.

Love is the gift, this Christmas and every other moment beyond, because HE, Jesus Christ, IS LOVE.

That’s what I felt in the candle lit glow of the sanctuary, a growing actual sanctuary of safety and love in the form of the church, new and old friends. That is how I saw the Christmas story new: the familiar, the sacrifice, innocence and the true LOVE. That is how I experience friends and family, the love of it all.

Christmas day brought still more love, care, laughter and our humanity in the form of all of us together. All the care, love and individuality. I am so thankful for the both/and. In it ALL, HE IS LOVE. We try to love and love well. We get to try to care and be kind to ourselves and each other. We GET TO cherish each other because, there by the grace of God, go (I) but truly we….

I pray for you, this Christmas season, that you GOT TO feel love in some form…that even in the hardest and darkest, hope somehow prevailed. I pray you KNOW without a shadow of doubt, how important and worthy you are and that you are able to rest and hope, in all that God promises.

May you find a light….
Complete joy and holiness…
The beautiful model recumbent my love made by hand. ❤️

Thank you for being on this writing journey with me. It is such a gift to write, interact and connect.

Merry Christmas again and a very brave, brave New Year.

Both/And

1 Peter 4:8