Tag Archive for: god

Leaves on a stream, Montana and taking deep breaths…

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(For my love).

“Shhh….” My love wrapped his arms around me, my heart hammering and breath fighting to get down to my lungs. “Imagine a canoe, gliding through the water, no sound, other than the water of the river. Drops drip off the paddle, look around and just see everything with wonder….”

After he’d described this to me a few times, I felt my body begin to settle, my muscles gradually aching with an unwinding from being tensed up due to CP and anxiety. I couldn’t feel each heartbeat any more, which was good, because I was calming. My love just continued to hold tight, and the grace he gave stunned me – I’d never known a love like this one and never will again. It is the closest I can imagine to the love of God, which I know was God’s very plan for marriage. Still, if I am honest with you, it is tough to feel worthy of this much love and grace, from both Husband AND the God of the Universe….and both seem to lavish it on me over and over.

This river is a long, unintentionally cultivated image between us, born out of many things. It is my favorite, most calming imagery when my emotion brain has highjacked my system, when my thoughts race and I can’t seem to slow them down; when I am triggered by, something. Anxiety among those with CP is very common, but we know that those without CP are also greatly impacted. The numbers of those diagnosed with anxiety has sky-rocketed in the last 5-7 years.

I hear it over and over in counseling sessions: the moments of flight, fight or freeze when something alarming sends a signal to our amygdala to release cortisol and adrenaline (emotion brain). In the same instant, our ability to access logic and thought, problem solving and sometimes the “obvious” reaction (logic brain), is rendered useless until something calms that overworked amygdala.

For nearly as long as I have been a licensed MSW and practicing counseling, this concept has been an important part of my sessions, at least once a day; but often, more than that. It is, along with both/and, the most important concept that I teach. It is not uncommon to have a laugh with clients who after a few times hearing it, are lovingly complaining that once I teach it, they can’t unhear it. Believe me, I get it! I even eyeroll myself at times when I just want to rant and engage in emotion brain, but instead, the words in my head are, “deep breaths, smell the flowers, blow out the candles.”

I use so many analogies with clients, some funny, others poignant and others downright silly, but I don’t know….maybe we all do better if we have a picture in our heads along with an important concept. I often ask them if they remember old cartoons when someone is panicking and breathing into a brown paper bag? While we giggle about the images, this is how it is with our amygdala: they just need AIR…slow quiet breaths in order to get back to a “normal level of stress,” turn off the flood of adrenaline and cortisol and return to logic brain.

For me, there are a couple instant images when I think about managing anxiety: anxiety floating like leaves on a river and Montana.

When I was an MSW intern at our local Hospice, I soaked up as much knowledge as possible from my gifted supervisor and the entire team, a multitude of disciplines and so many books on death, dying and the grieving process. One such book that left a lifelong impact is Dying Well by Ira Byock. It is a book filled with the truth as I and so many others have have lived it in regards to death and dying. While that entire year spent at Hospice was life-changing, I think the book normalized and encouraged the lens that was already developing for me, the lens of value, dignity, respect and normalcy in all areas of life, not approaching death or grief as a taboo subjects but instead, striving to be with our friends, family, neighbors, communities and even acquaintances in this stage of life. It was another layer of not wanting the assumptions, not about someone dying, their thoughts, needs or purpose. “We needn’t wait till death is knocking at our door to realize that the treasures in our lives are the people we love or have loved,” says Byock.

The book has a way of showing how the pace of slowing, how the being with one another IS the gift, even in end of life moments. It is the vision of release, slowing drifting as the river carries the leaves: our fears, pain, desire to fix, our deep grief in the loss of ones we love. All of these images have become the very fabric of my being. Acknowledging, processing, grieving and being at peace.

I drank up every sentence in that book. At that time, Dr. Byock’s blurb in the back pages said that he lived and worked in Missoula, Montana. And at the time, that was my only frame of reference for Montana. One day, after a long work/internship day and evening classes toward my MSW, I told my boyfriend (now husband,) “I think we should just run away to Montana. I want to go work with Dr. Byock.” He looked at me quizzically and I explained, Dying Well, my admiration for Dr. Byock and how the holiness of Hospice work was seeping into my bones. He hugged me tight and said, “I’ll go to Montana with you….” (there is a reason he is husband.) From then on, when I had a particularly rough day or a very inspiring one, I would somehow insert or inquire about going to Montana. And he always says the same thing: “I’ll go to Montana with you…”

We’ve been together for nearly 23 years and all along the way, Montana has remained a dream. Kids, homes, dogs, life, required our finances and to be honest, the time has just not been right. Though I now sometimes surf VRBO and Airbnb when I have a day and dream of Montana, hint shamelessly and somedays, just threaten to book our vacation, we have not YET. When we watched the series, Longmire, a few years ago, I even decided on the river I wanted to find…then found out is ACTUALLY in New Mexico! Still there are rivers waiting in many places…and watching Yellowstone has stoked our desire to go, in all new ways….

But we haven’t yet…

I think the dream of Montana and it’s calming power is actually in the imagining. Not that I don’t want to go! But I think if the idea of the river, log cabin, canoe and horseback riding can instantly calm me, then perhaps I am afraid to change the dream with the real live experience…

Do you know what I mean? Have you ever hoped for a thing and then it FINALLY arrived and the luster wore off way too soon? Then it was just over….. I would be heartbroken if these images that have been so steadfast and comforting, the splash of the river and the drips from the canoe somehow changed in real – life. And…we really do want to go find my Longmire River. I KNOW deep down that Montana’s beauty will be unparalleled. And…I really want to go sit on the bank and thank Jesus for the majestic landscape, to hold my love’s hand and say, “I’m so glad…we finally came to Montana.”

I pray you have ones that will hold you during moments of inspiration, fear, anxiety and everything in between. I pray all the dreams and hopes that God has placed within you will be realized, ten-fold. I pray that you can see him everywhere from the beaches in Michigan, fields of Ohio, the evergreens of Portland, the crashing surf of Hawaii and wherever your place is….

I pray you are inspired by leaders in your field, that hope and dignity abound and that we all can one day not need images to calm us, but that God’s presence instead floods every inch of our beings.

I pray for the richness of living well and when the time comes that grace and mercy usher us to the feet of Jesus, the arms of God the Father hold tight with peace; and HIS gentle murmur, all shall be well.

Both/And

1 Peter 5:7

xoxo

Ink…

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I have a multi-faceted personality, if I can be honest with you. I am all sorts of things: introverted and love when I get to interact with my closest circle or those I find a new connection with; both anxious about the how’s, where’s and what’s that accompany my disability and very comfortable in other familiar settings, especially my back porch! I am both a rule-follower and I have a bit of a adventurer, perhaps even rebel streak. I’ve never tried cigarettes but have long thought IF I was ever going to, I was going to be a badass and try a cigar… (my 13 year old daughter’s eye’s popped out of her head as she proof read THAT sentence!)

I’ve long been living with both/and even before I knew it was a thing…

My first tattoo happened in my twenties. My dear friend Jeannine and I ventured into Purple East, which at the time, did tattoos. I felt so brave (and a bit badass if I am really honest) as BJ etched a tiny Jesus fish on my ankle. The backstory….

I was working at the time at an alternative education high school and soon into my job, I began to see how, for so many, tattoos are an external view of the parts of their story that they were willing to physically and emotionally show. When I stopped to realize what a privilege that is, it made me curious about every single tattoo I encountered. It also began to normalize the idea (and importance for some,) of wearing what is most important to you….

I had the privilege after getting my degree in social work to blend a job I adored and being “in ministry,” which as I age, just makes me grin, because no matter what we do, when we follow and love the Lord, we are all in ministry, aren’t we? I so love this idea…. and anyway, I digress.

Because I knew without doubt that my love for Jesus was forever, I decided that I wanted a tattoo, a small ichthus (Jesus Christ, God’s Son, Savior some commentaries translate). I remember explaining my surgery scar to BJ, the tattoo artist, the reason for my ichthus and the call to my parents to tell them about it afterward. I was both nervous and proud as I waited for their reaction, after this adult decision of my own!

I had also decided I wanted 2 Corinthians 12:9 curved around my ichthus which says, “My grace is sufficient for you, in your weakness, I am strong.” It was placed where it was, (as close to that big surgery scar as possible) as a reminder for all Jesus has brought me through, and all he has yet to: the painful, hard and really beautiful. It is a reminder that at my weakest, (or my strongest), he will be my strongest.

I will NEVER forget my first day back to the high school after getting that tattoo. It was late spring, I had intentionally worn shorts. I was expecting the question, hoping to share about Jesus. Because of the separation of church and state, I could not bring it up, but if they asked, I could definitely answer! It came much different as I expected though…

“Miss, what’s that say?” one of the girls half sneered, half curiously asked me.

“Corinthians. It’s a -” I began to answer but was interrupted quickly.

“Well, that your boyfriend?” She emphasized, wide, expectant eyes.

How I loved that moment and will never forget it, ever. It was real and true to the lives these kids experienced. I did get to tell her about my Jesus, my verse and so much more. For the next couple years in that school she would smile when she saw me, introduce me to friends as “Miss Stacy, she loves Jesus,” point out the tattoo or even tell the “Corinthian/boyfriend” story. I loved every moment.

That tattoo faded a bit, but brought about so many conversations as many years passed. In February 2020, there was this, an event and post I wrote just before COVID changed us all, the landscape and how we all all see things… in our weakness for sure.

A few weeks ago in church we had a sermon on “what does God think about politics.” Ben Post spoke eloquently, introduced Ve’ahavta, Hebrew for “and you shall love.” I have been resonating with his words for weeks, the idea of loving God and his people, despite differences. I am a strong believer in kindness, caring for others and giving the grace we would desire for ourselves. E wrote “Ve’ahavta” on my wrist on that Sunday and it felt like it was meant to be there. When it washed off, I asked her to write it again and again. Then I knew, I wanted it there permanently in her writing. Today, she, Jeannine and I went to do just that. (They for support.) I am so thankful for the example of my Savior to LOVE. I hope that reminder to love only gets stronger. I am thankful for the many conversations to come from E’s handwritten reminder. And you shall love indeed. ❤️

I must tell you that even TODAY, FOUR YEARS and A FEW MONTHS LATER, I still, (STILL!) love seeing, feeling and explaining what this means to me. I love her writing, the consistent reminder to love. Just that…LOVE. Love when I see the annoyed cashier… or the client who I need to remind about an overdue account. Love myself and the extra pounds I wish would disappear, and the pups who chewed on my new shoes. And you shall love ( really try to model yourself after Jesus…)

Two Springs later, my youngest sat on my lap, running her finger over E‘s word on my wrist.

“Mama, are you going to get a word in my writing too?”

“Do you WANT me to get a tattoo in your writing? What would it be? ” I asked, surprised, but not surprised by her question.

“Yes, I do…” she said thoughtfully, then a few minutes after we both sat in silence, she asked if she could write her word. I knew if it had worked that way for one, it just might for the next….

She carefully, with fierce concentration and her tongue sticking out the way it always does when she is drawing the most important thing, wrote the word… J I R E H.

My heart skipped a beat…

She and I would belt out Jireh by Elevation and Maverick City every car ride to school, it was our anthem and our understanding of Jesus’s own heart. The Hebrew translations, in my limited knowledge says, “the Lord will provide.” It is layered with personal meaning as well as biblical meaning.

“Why that one, babe?”

“It’s our song and when I hear the song or the word I feel at peace.” I hugged her tight and wondered how long it would be until I made the appointment…..

A few weeks and many rewrites later, hubby got home from work a bit early. I spontaneously asked him to call the tattoo place just a few minutes down the road to see if we may be able to get it done.

That evening, my son’s best friend came over, was the first to see it and his smile was one I will not forget. “That is the coolest tattoo ever.” Joel told me. I smiled, knowing I loved all three of my little drawings….

The following Spring, I realized it was just undone, that I wanted words from my boys since my girls had both been so impactful. They were not as spontaneous, both needed some time to consider which word.. But what they came up with was no less important… sweet son and I have spent time watching all the Marvel movies together and most days, somewhere along the way will repeat to each other, I love you, 3000. If you know Marvel, you know. And If you don’t…well, it will be some fun research for you.

Hubby picked the word, adored, a word that even after 22 years together, I still struggle to understand. Am I really worthy of his adoration? And what does it truly mean? And do I show him mine enough?

(Oldest wanted to pick her own word, because technically, ve’ahavta was my own choice. Because it was the season of beginning to look at colleges, she wanted, always home to remind me that “wherever I go, mom, you will always be my home.”

Back to my now favorite tattoo place, and there I was, with my neat little square. It has been about one year exactly of loving those reminders of Jesus, my loves and their own handwriting. There have been countless conversations about my square, (for lack of a better description) and the pure love that comes with each…

You think you know what’s coming, don’t you? It’s a little different than you think…

Remember that trip I took with hubby to Disney in February? One night, as we got settled into the bus to return to our resort, I noticed a woman with a beautiful tattoo all the way up her arm. I sat in my wheelchair, unaware that I was comparing her tattoo and my own lovely square, looking back and forth between us. I don’t think I really thought much more than, to be honest, that hers was pretty, I wondered what the story behind it was, and if I’d been within earshot, I would’ve asked.

Cast member unlocked my chair, wished us good night, thanks us for visiting; rolled me down the ramp. Hubby took over pushing and with the voice of the one who knows me as well as I know myself, said, “I saw you looking at that lady’s tattoo. I can see you adding to yours and having something similar.” I couldn’t see his face as we entered the resort, but I could feel his truth, love and his big smile. I was both dumbfounded and I felt entirely known, even though I hadn’t even thought of it myself….

We talked about it many times during the week in line at Disney, while we nibbled on Mickey pretzels and “plastic cheese” and as we noticed others’ tattoos. We talked about it when we got home, with the kids who were so excited about the idea…which again, surprised me.

My E began drawing my story in tattoo form, all the meaningful parts of me and the pillars of what makes me who I am. I love her artwork so very much so that process was such fun by itself. What came out of all it was the desire to share who I am in an outward way that ultimately gives glory to God; gratitude for individuality, for love, the love of family and being content exactly as I am. From the time of Hubby’s comment to the ultimate design, the process was so full of “us.” And it felt so right…

Off to visit JR and Michelle, then a few weeks wait. The timing was perfect though, as my appointment was the Friday before Mother’s Day and just one week before E’s graduation open house. It wasn’t until I sat in the chair, with JR set to go that I realized that this time would be very different than getting my words. I gulped, and we were off….

4 hours later, JR had the bones of the tattoo finished. It was absolutely right. I was in a bit of pain and so much joy as I looked down the first night…hubby was in awe, daughter had hung in supported me the whole time and I just felt incredibly strong. That is SUCH a rare feeling about ourselves, isn’t it? I felt like, YES! Here I am! Let me tell you about my Jesus, my story, my personhood.

The next day I returned to have JR put the finishing touches on my new sleeve, a part of me that now feels like it has always been there.

-Along with my square are the kids birthdays and our anniversary. Next is my anchor, a symbol of many things including my alma mater, my hope, and a few special others. Going clockwise is BOTH/AND; Michigan, a representation of the Wind (an element in which I always feel God’s presence and power) and half of a quote that I share with my oldest daughter. Te amo represents my kids commitment to becoming bilingual and their love. Coordinates for one of my favorite places, my bike (freedom of movement) and then my hero Mr. Rogers is represented with 143 and Mentionable Managable. Up on my bicep is a butterfly in a state of change, the picture for me of Psalm 13. There is so much wrapped up in that butterfly, my hospice work and memories, my Jesus and so much hope. Finally, a windmill and Mickey; Lastly is a favorite quote from Cinderella, one of those life quotes that has just become my regular.

I keep looking at it and smiling…I keep grinning, feeling very unexpected, badass and so content; almost willing people to ask about it so I can tell about any part in which Jesus IS the story.

I told my mom, “I know this is probably not your thing. But I am so thankful, that in all of this life, through all the work I’ve done, I know who and whose I am.” She hugged me tight and said, “I’m so glad.” Me too, Mama. Me too.

Thank you my Jesus, for the so many ways that YOU create beauty, artistry, story. Thank you that you make each of us with unique loves, interests and things that move us deeply. May we always give you the glory. May we be curious about those around us who are willing to share their stories and reach out to hear them. And help us to see you reflected in it all.

Both/And

Psalm 13

xoxo

Links

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When my mom picked up her computer to start writing this week’s blog I asked if I could write. I wanted to write on my mom’s blog to talk about my experience with LINKS. You all probably know me from my mom’s blog. I’m her youngest daughter.  I am in 7th grade and 12 years old.

I feel like I have a connection with kids with different abilities. I am so blessed to have been able to meet so many people who I am very close to now. Last year, I met this amazing boy with autism (T). He didn’t really know how to control his anger or stress. He would have little tantrums.

(T) is both fun and smart. I started hanging out with him not too long after I met him. I became really close friends with him. He was in a good mood most of the time and in my 3rd hour choir class. He really didn’t like choir, that’s where he needed help the most. I felt sad for him because he didn’t know any better. My teacher was the best when it came to these situations. She always told us “I’m not worried about him. If I thought he was going to do anything, I would take care of it. I know he is in control.” I always thought she was so brave for that. I wasn’t scared of him; I was just worried. I knew he was going through a hard time; he just needed a friend.  And I was going to be that friend.

I found out he has a deep love for squismallows just like me. We started bonding over the cute plushies. A few weeks later, he walked over to me and told me “Sky I really like you.” “Well, I like you too.” “More than a friend?” he said excitedly “Oh umm well (T) I’m really sorry, I just like you as a friend. I don’t know if I’m ready to be really liking anyone yet.” He looked down and said “ok.” he dragged his feet and walked away slowly.

 I felt bad. I mean should I have said something different? But at the same time, I wasn’t really interested in dating him. I just wanted to be friends. Eventually he stopped thinking about it. He is an amazing kid and I love being his friend.

After the summer, I come to find out that I will have two classes with him! I was so happy. We normally went on breaks together throughout the day when he needed them and I helped him with all his work. In the 2nd quarter, 2 new teachers joined. That meant a lot of kid’s schedules would change. Including mine. I got moved out of my 1st, 2nd and 3rd hour, two of which I had with (T). I heard from my teacher that he was really unhappy without me in either of his classes. I felt so bad, but knew it wasn’t my fault.

 When I got home that day, I told my mom and dad everything – how my schedule changed and that I wasn’t in any classes with (T) anymore. My mom was really sad to hear that. My sister and brother have had one of the teachers that I got moved out of and we all loved her. My teacher and mom did some mastermind hacking and got me back into her class! They both thought that it was a good idea for me to be back in her class. I’m so thankful that it all worked out. I wasn’t moved back into the other class with (T), so I remained in my new 3rd hour class. But Tyler is still my bestie as well as his other friend (L). She is an amazing friend to both of us. (L) started her school year in 6th grade by joining the LINKS program.  

LINKS is for anyone who wants to join, also people with different abilities who need a little more help. (L) has been in links for a while now. I have wanted to join but I never knew how. We’ll come back to that. A few weeks ago, I was in 1st hour. (T) was not there. I asked to go to the library to finish my work. On my way down there, I saw Mrs. (P), a LINKS teacher. (T) was standing by the main entrance with all of his stuff. I asked “what’s (T) doing?” “He wants to go home; he doesn’t want to be at school. I tried talking to him asking him to come back to class but he wouldn’t listen.” “Could I try talking to him?” “That would be great!” I walked over to him, and asked “what are you doing bud?” “I don’t want to be here!” “I know, but think about it, if you never came to school, you wouldn’t be able to see all of your friends.” He said “yeah that’s true.” So, I gave him a hug and we went to the library. On the way, Mrs.(P) said “You’re the best!”

 Later that week I got nominated for student of the month. My teacher saw how good I was doing with (T) in 1st hour. I was thrilled! I was so blessed with all these opportunities. Thank you, Jesus. The next week, I was walking down the hall and Mrs. (P) stopped me and said “Hello sunshine! I’ve seen how well you work with (T) in class so I thought that I would add you to the list for LINKS!” “Thank you so much! This means so much to me!” She gave me a hug and emailed my mom about it, telling her how proud she was of me and how well I work with (T). Ever since then, I’ve been helping and being there for him in any way he needs me. I am so blessed to have met all these incredible people. My life would not be the same without them.

Both/and

Xoxo   -(S) for my mom. She leaves tomorrow for vacation, but will be back with even more stories!