Tag Archive for: CP

What do we assume?

I think, like most of America, I am dreading the next few months ahead of the next presidential election. As a therapist and a living, breathing human living in the US, I have heard so many opinions, broken-hearts, hopes, concerns and torn up family systems because of the state of our democracy.

*Here is my disclaimer, even before I write this post: This IS NOT a political post. I will not make this a post about who you vote for, why or even the passionate reasons why. I won’t, because I believe and value each person’s right to choose. Even if I disagree and even with all the contentious dialogue and tension that currently exists….

We are a society that WANTS to explain our feelings, our reasons, for many reasons. None of that is inherently wrong. We believe in OUR beliefs and our reasons – each side. And, As I age, I am all too aware of the massive damage and cost of assumptions…

Last week, our family spent a week on vacation at a beloved small lake up north on the Michigan coast. It was a delightful week of connection, rest, relaxation, fantastic food, smores and unplugging from our normal routines. For our family of 5 (plus my parents and beloved family friends) this was the 11th summer and our last one before our E heads to college in the fall. We laughed, played endless Spades and Euchre games, snacked, read, floated, soaked in the sun, had blessed conversations and tried hard to avoid social media/devices. The one exception was my dad and 18 year old daughter’s request to watch the first presidential debate.

In a recent sermon, my friend Steve Carter talked about the idea of having one grand confession daily: how confessing to ourselves, to God and to our safe, core group of people can actually allow us to greater love and depend on God. I l have been trying to be brave and practice that, so here goes…

My one grand confession today…. I really struggle with politics, as I have since I was 18. Before that, I don’t know if I honestly paid much attention. At 18, I was able to vote, tried to engage in beliefs and reasons to vote but quickly felt like it was all fake. I felt like both candidates might say the things that voters want to hear in order to get elected, were profoundly mean to one another and the whole business seemed to cultivate ugliness. Sure, I also saw most tension go away after whichever candidate was elected, but the whole process felt like bullshit to me. I always tried to vote, to educate myself the best I could, but my tolerance for it all has been low and gotten lower the last two voting cycles.

Ok, I guess one more confession…

I am so afraid this time around will be so much worse….which is why, when my family turned on last week’s debate, I sat with my back to the tv (while beating my son and his best friend in Euchre) but still hearing the already barbed, cutting and deeply painful interactions between the two current candidates. I felt my body tense as they traded insults, avoided questions and generally had little respect for one another. My insides that hope with every day to become more like Jesus, felt profoundly sad as I listened/tried NOT to listen.

I heard the commentator direct a question to President Biden, then a long bit of silence. Suddenly, I felt the hair on my neck stand up…

It was a few months into President Biden’s tenure in the White House when one of my kids came home, distraught about a friend mimicking a recent stumble the President had, while going up the stairs into Air Force One. Months before that, there were videos of President Trump mocking a disabled reporter that also greatly disturbed each of us. We as a family, value respect, care and equality in many areas. Disability is one that hits us differently because of me. Still, I am proud of our conversations, feelings of injustice and values in this regard. But when things like mocking and disrespect rear up, especially from the leaders of our country, it also hurts us a bit differently as well. My daughter was so upset that a friend who knows our family well and knows about my disability would be mocking a stumble….

That day, I took a DEEP breath and knew this would be yet another tough conversation, that stumble on the stairs for President Biden. I was not wrong. And over the course of his presidency, that stumble has cast a shadow on his cognitive abilities, his fitness as a leader and been fodder for many. In other words, many assumptions.

It leaves a knot in my stomach because of my own disability. Cerebral palsy is defined as ” a group of neurological disorders that affect a person’s ability to control their muscles and movement.” It’s caused by damage to or abnormal development of the brain before birth, during birth, or in early infancy. The term “cerebral” refers to the brain, and “palsy” refers to problems with muscle use. (Mayo Clinic).

Whew, tough to read that my own brain is “damaged, or abnormally developed.” That leaves a lot of room for interpretation….

From the time I could read (but not yet grasp the definition,) I have been afraid.

Of what, you ask?

So many things…I am afraid that when I write CP on a form ( as required on job applications when I was 16), I wouldn’t be considered for jobs because someone might assume things about me.

I am afraid that when people are new to me, see me, meet me, or arrive in my office, they might assume I have cognitive impairments because I walk different.

I have experienced people freezing up when they meet or see me because they assume…something.

I babysat for a neighbor one time, but then was told they didn’t want to have me again because they didn’t feel comfortable when I was walking with their child.

I have had people talk louder to me, speak to my husband instead of me or offer to send a nurse to my house when I was making a medical appointment.

I have spent a lifetime being afraid…of assumptions; navigating a culture that assumes SO MUCH. I have made an art form out of anticipating how people might react to me and being preemptive in order to make them and thus myself, more comfortable. I, (thank you Lord,) I have a career in therapy which made it non-negotiable that I do my own inner work with the my own therapist. These fears are far less at 51 than in my youth and yet they are still very real sometimes.

I empathize, which, hopefully, makes me good at my job with those who are also afraid of assumptions, those who have their own fears about showing who they are. (In other words, all humans.) My goals, both professionally and personally are to offer the space of acceptance, care and understanding, to exemplify Jesus Christ, whether people know him or not.

I think it is one of the ways God has worked my CP out for the good is that I both get to and must do my own work and because of CP, have a deep awareness of pain in general. I KNOW I would not be who I am without CP and, though there are many days I would like to trade the pain, I would never trade the lessons learned or who I am still becoming.

But because of it all, (the both/ands of CP), the hair on my neck stood straight up during that debate as President Biden groped for the right words, moved a bit slower and stumbled. I knew the rhetoric in the days following would be critical, assumptive and cruel because of these issues AND the deep divide in the country. It made me profoundly sad as we finished our card game that night…

The next morning, I scrolled on my phone for a few minutes before I got up.

It was so swift and so damning, the response to his performance: “Get him skilled nursing care, not a presidency.” “When is someone going to tell him to just enjoy his old age in a rocking chair…” “He is not able to walk, let alone run a country.” “A president in a wheelchair, I think not!”

I understand there will always be opinions about candidates, things we agree or disagree on. I also understand the choice to put oneself in public realm, which invites public opinions. But these are only a FEW of the assumptions, statements that are not about President Biden’s character, record or career. Rather they are a cruel and damning commentary about his physical being. These feel like attack on something else rather than a dialogue about the political issues.

Then another thought hit me so quickly it took my breath away…”if people are this cruel after his stumbles, (both literally and figuratively), what might they say about me? Right back to those fears…

I fell a couple weeks ago. I was turning a light off in the kitchen and for whatever reason, my feet got tangled and I hit the floor, hard. I wasn’t hurt, (more than my pride) other than the wrench in my back because I twisted on my way down to protect myself. I used a wheelchair the next day in church and was so anxious about the well-meaning comments and worry that I saw on friends’ faces, that I spent the morning trying to downplay the whole thing. I wonder kept wondering what people might assume because of my fall, the use of a wheelchair and the way my body is functioning as I age.

The difficulty is, we will all age, Lord willing. Would any of us want the bar that is being used with President Biden to be used on us if we stumble, forget some worlds or get lost in a conversation? Would we want to be relegated to “sitting and enjoying life” as our bodies change or be considered “finished with our identity and calling” because our physical bodies are slower, less capable or different than others? I know many whose intellect, purpose and abilities had little to do with how or what their physical bodies allowed, some of whom are young.

It’s’ a tough bar and none of us really can control how our bodies will change over time.

I am all for discussion about the issues. I don’t even mind civilized disagreement. But oh my goodness, it seems unnecessary to crucify someone because of their personhood that is beyond their control. In our house, a regular phrase is “generous assumption,” a phrase that if you know Brene Brown, you know. If you don’t, here it is…Making generous assumptions means we enter the conversation with an empty notepad. It means not creating a narrative based on a storyline that we have already played out, assuming we know another’s motives and why they do what they do. It means assuming the best about each other…. Husband reminds the kids at home, “it takes a lot more effort to be mean to be kind.” The truth of that grabs me every single time.

I’ve been trying to shake those cruel comments for the last week, my own fears and my fears for our country. I am taking a break from social media and surrounding myself with hope in all the ways I can. I am not perfect and have made my own mistakes with assumptions. But I suppose this is my way of shedding light on how assumptions can hurt all of us and perhaps my earnest plea to treat others how you want to be treated. John Bradford said, “there by the grace of God go I.”

Amen and amen.

Much love,

Both/And

Psalm 13