Having a full heart, a lot of thoughts, and holding it kindly. (New post below!)
No matter where you are today, you are important. https://stacymcneely.com/my-heart-at-the-end-of-this-week-feels-torn-in-so-many-places/
No matter where you are today, you are important. https://stacymcneely.com/my-heart-at-the-end-of-this-week-feels-torn-in-so-many-places/
I wrote this Monday, but for some reason had difficulty publishing it…
She smiled at me, eyes full of depth, love and joy.
“Mama, you are always there for us.”
My heart jumped up to my throat in that very second. The dialogue in my mind was so ready to argue the minute she said it to me. “No you’re not, you completely blew her off the other day. You didn’t show up for her rehearsal, you overslept so she overslept and she is really stressed out about her busy day.” My inner critic was instantly telling that I kept screwing things up as her mom.
“I love you so much, Mama.” Her arms slid around me and the hug she so willing gave leveled me. I held her back, brushed the hair off her forehead and kissed her head.
“I love you too, babe; more than you will ever know.”
“Oh, I do know mama. You tell me all the time.”
Though this interaction was with my youngest over the weekend, it has been with my older two over time as well. Consistently, they love in spite of my “mistakes,” my inner critic and all the ways I am human.
Perhaps you relate? I have been alive AND a therapist long enough to know that I am not in a minority in the ways that we beat ourselves up, emotionally. It is by far, one of the most common themes that show up in counseling. We have soaring expectations of ourselves, our conversations, our stamina, our parenting, communication skills, parenting and the list could go on and on…
It is increasingly more difficult in our society to be kind to each other, let alone to ourselves.
It would be easy for me to become jaded as a therapist in the world as we know it today. It is one day before the 2024 Presidential election, the world is exceedingly polarized and it seems, lacking empathy and filters with our friends, family and loved ones. If I am honest with you, I am not jaded, but I am a bit weary: the biting and bitter rhetoric that comes at every turn, families and friends who walk on eggshells with one another, a profound loss of respect and finally, saturation by ads, mailing, phone calls and texts. Yes, I AM a bit weary…
More than that though, I am sad. I am pained and hopeful for something so much better for all of us.
Whew….that’s a thought, isn’t it? Whatever we have to do…?
What have those before us done, in order to keep moving forward? Our history books are full of those who have worked, scraped, sacrificed and never given up to keep going forward. Our Bible – the very life and love of Jesus…
We took communion at church yesterday and our guest pastor talked about “taking, receiving and giving.” I can’t stop thinking about that today…
It is my hope and prayer today, that we can really SEE one another as we vote or maybe already have. Can we see the person just ahead of you at the polls, another who is wearing the opposite candidate’s t-shirt as someone’s mom, dad, teen or grandparent? Can we see ourselves speaking to others as if they ARE those people in our lives?
I’ve been doing a lot of talking with those who have been around longer than I. Most reflect to me, “Elections were not this way before. If your candidate won or lost, you may have been happy or sad, but everyone realized this was democracy and why we all get to choose. It has become so divisive, splitting relationships and involving a level of anger and bitterness we’ve never seen.”
How about you? If you are reading, do you agree? Or is it difficult to remember anything other than how the political landscape feels today?
Here’s my thought today… if this is all you can remember, both political parties with drive to win, to be for America, but with decidedly different approaches and the spirit of pain, dissension and ugliness that we can all feel, let’s make the next 24 hours better. Let’s make the days and weeks following Election Day, results and everything after, BETTER. Let’s make that our most important goal, no matter what – as if we actually WOULD, FLY, RUN, WALK, CRAWL OR WHATEVER WE HAVE TO DO TO KEEP MOVING FORWARD.
******
*Here I am, the day after this election has been completed. I read through these words I jotted on Monday and they are poignant to me. “Whatever we have to do to keep moving forward…”
This takes on a new meaning for all of us today, I suppose. However you land with these results, celebrating or hurting, hopeful or disillusioned, God is for you, he is for us, ALL.
Take good care of your hearts, your thoughts, and your people. Breathe, look around, find something beautiful right where you are.
“Here is the world. Beautiful and terrible things will happen. Don’t be afraid.”
Frederick Buechner
Both/And
Psalm 13
xoxo
Hey there, I am not sure how long I will keep posting here and on my business page. We are working on adding a subscribe button for direct notifications on the new page.
Until then, here are some new thoughts today and beyond. God is good.
Hi there! I have a new post just published here! I am so sorry for the delay, working diligently on the new merged site that combines my work and my writing. Thank you for your patience as we are trying to get the new site set and just as user friendly. Until I can get the subscription button in place, please use the following link to connect with my writing there.
I so appreciate your reading, feedback and interaction. Writing is such joy to me.
I find myself in a strange, yet lovely and new spot as I age. I am far more accepting of myself, the roles that I am called to, the ways these change like the tide and the ways they are beautifully and achingly the same. My role as “mom,” is ever-changing as my kids also age. With my oldest in college this year, my 17 year old son on the very brink of adulthood and my 13 year old daughter changing before my eyes, I would be remiss if I didn’t take an honest look at how I am changing as well…
They don’t need me the same ways they always have; they need me in different ways now. (By the way, THIS change is also wrought with both/and, the grief of changing family dynamics and the exhilarating moments of growth.)
Yes, I MUST acknowledge both/and as our family shifts a bit…otherwise, I forfeit the beauty and right-ness of God’s plans for all of our lives, rather than becoming bitter, fearful and sad at all the independence and therefore, change, that plays out in every moment of every day in our family.
There are other changes too…
I have been working for two full years with EMDR International (EMDRIA) to become a certified EMDR clinician, which will reach completion this week. Just as quickly, I will begin the process of becoming an approved consultant with this ground-breaking organization. As I look at the next chapter of this career I love dearly, I am focused on bringing continued perspective and growth to brave clients as well as assisting other therapists who also care deeply about complex trauma and the healing work of EMDR.
I am a part The Fred Rogers Educator’s Neighborhood for the next year as well. I am very honored to have been accepted by Fred Rogers Institute for this year long study. Along with a group of others who have been impacted by Mr. Rogers, we are together learning how to utilize Mr. Rogers’ wealth of knowledge, study and perspective in many areas of child, family and professional development. Though we have met only twice, I am so thankful to rub shoulders with others in the world who genuinely believe, like Mr. Rogers, that kindness really does change us all. And heavens, don’t we all need more kindness in the world?
As there always is in life, there are difficult adjustments too: this week, two significant deaths in our world. Though I specialize in grief and loss, it is still very personal when it happens to you or in your very personal corner of the world. Losses bring us to the opportunity (I say this so gently,) to look back, to grieve again or in new ways and to use losses to inform how we want to LIVE going forward.
There are new and enduring friendships, growth in so many areas as we have recently come home, again to the church that played such an important part of my life from age 14 – 24. God has stretched, challenged and blessed our family in profound ways in the process of leaving our former church, grief like I have never known in that process and the faithfulness of finding a new church community. It is both the biggest blessing to be cared for, to be vulnerable and to love and care for others in this new and not new church home.
Finally, there is the both/and as World Cerebral Palsy Day was observed on October 6, 2024.
It is a heart-wrenching thing, this part of my identity that I so wish wasn’t AND after many years of grappling with what it means for and about me, to find pride, hope and love for myself and fellow CP warriors. It is so holy to see, validate and celebrate the bad-ass-ness (I made that up, can you tell?) that comes with living with and caring for those with this disability. This week, a friend finally got to bring her son (who has CP) home from at least a month’s stay in the hospital for complications with seizures and other physical issues. I am stunned by her son’s (and her own) positive attitude after so much. For as much shame as I have carried and overcome in my lifetime around my own diagnosis with CP, it is gift to be able to smile and be proud on World CP Day.
Here’s the thing…God is not, will not and has never been surprised at the ways he created us, the things we do need to go manage here, apart from heaven and how we are limited in our humanity in the midst of these things. He IS with us, even if it feels like he absolutely IS NOT. Deuteronomy 31:8 says, ” The LORD himself goes before you and will be with you; he will never leave you nor forsake you. Do not be afraid; do not be discouraged.”
Ohhhh, that’s such a hard one, isn’t it? We are so human in that feeling that says, “why does God put me through this? He COULD change _________________…..”
I hear it multiple times a day and my own reaction is understanding the question AND compassion. What I hear in that phrase, I immediately think, “oh, he is NOT, putting you through it; he is holding you, as he himself hurts that this is happening too.”
I do not understand all the mystery that surrounds the what’s, how’s and whys that surround God and his sovereignty. I have been there too, crying in rage, frustration and desperation. I have also come to a place where there is more peace in releasing the whys to God’s care and fully trusting him anyway…
I suppose that is how, after many years, many feelings, many experiences and many prayers, I can joyfully put on my green World CP day t-shirt, raise a “cheers,” to my fellow bad-asses, and hold space for that rather than the negative.
I am curious, how are you experiencing change in this season? Maybe we can hold each up, give more care to ourselves and others and float on these crazy waves of change rather than fight them…
God, who is in it all, through it all and who holds it all together: Thank you for understanding our limits, frustration and even anger when things aren’t changing for the good. Thank you being near, always. May we seek your understanding, your heart and greater trust in your love and goodness. May we see ourselves and each other with your vision, compassion and desire for whole-ness. May we know love and joy as only you can give.
xoxo
Both/And
Hey there, there are some exciting changes coming, at least for me!
Through the help of my friend, Dan, we are working on stream-lining this blog and my professional website. It will be undergoing some upgrades in the weeks to come and I am excited about that. What does that mean for you?
For now, it simply means that I will start publishing under my professional website, linked here!
I will keep this updated with changes for a while, just to keep people current.
Please go to this sight, where you can read past blogs, a new one today and see what is happening for me professionally.
https://stacymcneely.com/world-cerebral-palsy-day-2024/
I appreciate your readership, encouragement and engagement!
xoxo
Stacy
You can feel the energy building in your body, your head spinning….realize you must find a way to manage it….
Lace us your shoes; you leave your Air Pods home and now listen to each footfall, hoping you will find the answer to the question that is rattling your insides, even though the question itself is unclear.
You’ve been here before, this restless, angsty spot that feels both frustrating and exciting at the same moment. And even though you have felt this restlessness before, each time it is again surprising and unknown.
Maybe you are a high school senior, with a horizon full of dreams, questions, fears and possibilities. Or you are a newly pregnant mama with so many feelings at once. Perhaps your spot is one of fear, and unknowns you didn’t ask for. You are on an edge of new things, even though you simply long for “the old.” Maybe you are in a job that has lost the joy and you dream every day of the next or new chapter. Finding love again after a broken heart, a job transfer, retirement or something else. Maybe you are taking on a new challenge in your career or longing to add “____________” to your story.
Whatever THIS spot is for all of us, It IS both an exciting and terrifying one. Sometimes the both/and is an extremely difficult thing to hold inside ourselves.
The older I get, the more I realize that living in the both/and is far more important and “normal,” than it is to have a “definitive answer.” What I mean is, most of the time I am teaching how to acknowledge and get comfortable with the unknowns rather than helping with a single dimension of emotions and experiences.
I recently spoke with a parent who is newly divorced and is adjusting to a new life, including shared custody of their child.
“Stacy, I can’t just be ok. As soon as I pick up my child, which I counted minutes until I could do so, I immediately begin dreading the moment when I have to bring them back to my ex.”
This is actually a common difficulty that is voiced to me in the privacy of therapy. I cannot imagine that sense of joy and dread at the same moment. I pray for many who find themselves in this situation – it is one of the most difficult in the world from my perspective.
I spoke with another parent who said to me, “dropping my child off and leaving them at a college many hours away from our home is one of the hardest things I have ever done.” The sheer agony of separation after you have poured your heart and soul into them is impossible to comprehend. And, the joy of watching our beloved kids soar? Well, that too is indescribable. I can relate.
The now and not yet…
both…and.
Our lives are more full of these sentiments than the moments of feeling just one feeling (and now that I mention it, we’d all just love to feel “good.” would we not? )
I can see so many clients, friends and families faces as I type. It is agony to be IN the hard; pure agony. And, when we have someone with us, to hear, hold, yell, comfort and understand, it becomes a bit easier.
May I give you a glimpse into my office – where both/and is the standard?
She hung her head and cried until her whole body shook. I sat across from her in my office, feeling my own heart hammer as she described “fighting cancer again.” Her journey held so much insult this time around. She and her husband had both just retired, planned a “trip of a lifetime,” and now had to forgo it so she could begin a grueling and hopefully life-saving regimen of chemotherapy.
“I know you are going to BOTH/AND.” She blew her nose in soggy Kleenex and I leaned toward her with a box of new ones. She took two out of the box, then blew her nose demurely.
“Yes, I might….but then again, maybe not yet,” I answered her. We talked about her faith, her love for Jesus and her anger at him that seemed to bubble up without any warning. We talked about the injustice of the new diagnosis, mere months after a routine checkup with her family doctor. We talked plainly about fear and the terror of death. Then she straightened up, sat primly in my office chairs and tried to switch gears, I think for my benefit.
“I’m sorry, I’m good now…I’m sorry I cried.” She looked at me from across the room and I felt internally sad at the whiplash she had just been through. She began finding every single reason to get away from the subject she had just wept about.
“That must be so hard to have such limited time to feel all these hard emotions,” I started gently.
“No, I am fine!” She stated with false bravado.
“You are allowed to be scared.” I said, meeting her eyes. “Do you know that it’s ok to say that, both here and anywhere you need to?” She dissolved into shaking sobs again, soaking another Kleenex.
Our next few months were filled with ALL the both/ands, fears of leaving her beloved family, loathing about medical side affects of chemotherapy, injustice and cancer; comfort found in her well-worn Bible and relationship with Jesus Christ and her wonderings about heaven. She wouldn’t talk about it, much, just referring to it, “when I get there.”
We talked often about my favorite Psalm, 13. It is the ultimate both/and to me.
She continues to fight the cancer that threatens her body, but not her heart and soul. She only rolls her eyes a little when I still mention both/and. Her eyes glisten when she speaks of being with Jesus and loved ones she longs for. In this context, the excitement for heaven is as real as the hope for more time.
She continues to teach me more than I believe I teach her. Love, passion, drive and joy in the life she gets to continue living. Not letting fear drive, we say throughout our time together.
She is just one that I have the honor of spending my days with. One of the strongest I’ve ever met, along with her family. There are others in their own middle, each battling to hold feelings that seem to oppose one another. They tell me often about being disgruntled that they know both/and AND grateful that they know both/and.
That is exactly right, being able to acknowledge our grief, pain and fear that may not be best described with words….and, holding unswervingly to the hope we profess.
“Stacy. When will I get THERE? When will I just be ok?” You would be shocked at how often I am asked this or something very similar. Oh, my heart WISHES I could answer this in the way soo many would like me to…I cannot. I often answer with something like this: “I know it’s so hard to wait…how do you care for yourself in the waiting for the next right step.” This is my verbal reply. Most of the time, this is the answer in my own head, sometimes a version a what I say to clients, my beloveds, or myself: “You are getting there, In exactly the right time, in the way he allows. If there is the right college decision, getting an answer after tryouts, awaiting test results, finding fulfillment, love or purpose after a long drought, Jesus is already there. Keep holding on, trusting yourself and being kinder than necessary. In the meantime, give grace. Listen more, speak less. Be a friend to yourself and others. Allow for the whole range of being human, feeling all the things, receiving comfort in many ways and trusting that somehow, all shall truly be well, even when we can’t see it.”
xoxo
Both/And
Psalm 13

(For JKB, EGM and all who need a reminder)
Perhaps I have mentioned it before, perhaps not. I am a huge, and I do mean, HUGE, Olympic addict. I credit my parents, with whom I watched the Olympics faithfully as a kid and have continued in my own family.
As I was glued to every moment I could be in the last few weeks, I kept seeing this commercial, Second Language. If you missed it, here it is again.
https://youtu.be/Whm_-aL9HmI?si=5Ii-K-NYfiyQaD0v
Each time it came across the screen, it struck a bit of a different chord. Initially, I was so impressed that it was an ad FOR Jesus, playing prominently during the OLYMPICS. Think about it. There were such big investments from sports in many other commercials. And all the sudden, just as they did in the Super Bowl commercials, here was a conversation about Jesus, from hegetsus.com
The commercial asked, “what are the most difficult words to say?” I identified with the humanity in the words – “I was wrong,” “I forgive you.” “I am sorry.” Those ARE difficult…Then, someone said, “Goodbye.”
I spend so many of my days as a therapist hearing about, learning about, assisting with and even helping people stop running, from goodbye. For something that is so required, this side of heaven, our society has such a hard, hard time with goodbye.
For most, goodbye is associated with some sort of separation from someone deeply loved. Perhaps because of distance, necessity, painful circumstances or death, it’s no wonder that “goodbye” is something that most of us want to avoid like a plague. The circumstances can be varied, traumatic, expected, shocking, the list goes on and on. It is not something that anyone enjoys or wants to be good at.
And…it is necessary for all of us, at some point, isn’t it?
I have shared some of my most impacting losses in these pages, the experiences that in all their difficulty, have led to the love, redemption and depth of who I am now. But the getting there? Well, that has been anything but simple. That is the heartbeat of why I do what I do; first my own, then our collective experiences with not knowing how to say goodbye.
Sometimes, we must say goodbye to a “normal,” functioning body because of injury, cancer, illness or disability; goodbye to someone we love dearly. Perhaps we face goodbye to security, control, pets, siblings, jobs, plans, dreams. I have spent time in what feels like the very pit of hell with parents who must surrender beloved babes back to Jesus, with families who surrender loved ones to mental illness, addiction and/or personal choices. I have watched friendships die in many ways from kids to elderly, most times with complicated dynamics. There is goodbye to seasons, youth, identity, purpose. We grieve times of complete and utter injustice. Goodbye is in reality, is one of our most difficult, significant parts of being alive.
Can we say goodbye well? Is that even possible?
In a very therapeutic, but real-life sense, my first thought is yes. We begin by being IN it, being present with the fact that you are grieving: naming the pain, anxiety, sheer alone-ness and finality of goodbye.
This is so much harder than it seems.
Many of us have become skilled avoiders of most of our feelings, myself included. We often scroll, shop, eat, drink, work, play, yell, sleep, numb or self-inflict pain to avoid feeling the pain of loss. I have heard countless, understandable methods and reasons we all use in order to NOT FEEL the gravity of loss. It is unthinkably hard to sit with the feeling and the other emotions that come with it.
“Stacy, just tell me how to make this feeling go away, I don’t want to be grieving for too long.”
“Aren’t there steps to this? Just tell me what they are and then I be done feeling this…”
“Can’t you tell me how to make this go away?”
My heart aches when I hear clients nearly beg me for the “quick fix” to the feelings that threaten to overtake us when we are grieving.
Do you remember the book, “Going on a Bear Hunt” by Michael Rosen and illustrated by Helen Oxenbury? It was a family favorite before bedtime and I am sure that husband and I STILL know it by heart. Throughout each leg of the family bear hunt is the refrain, “you can’t go over it, you can’t go under it, you’ve got to go through it.”
So it is with healing the grief and many losses there are in the human experience: the only way through, is through. As painful as it is, I’ve learned to help people heal from every loss, struggle, painful experience, going through is always the beginning.
If you are annoyed, I understand. I’ve had that in my office too, sometimes annoyed at me for saying these very words. Of course I am going through, Stacy. I don’t really have a choice.
Maybe a good word here is acknowledging, being with: holding space for our honest feelings. It means, as Mr. Rogers encourages, mentioning our hard, raw, sometimes unbearable emotions so that we can manage them (instead of using all of our much-needed energy to avoid them). I think this is the hardest part of being a human who feels, this idea of acknowledging and being with those feelings, especially when the feelings are so painful. It is hard to feel the feelings with no end date. So…. dang…. hard.
Often, because actually feeling our feelings in scary and hard, we start avoiding, striving for a plan, or talking ourselves into “getting through” loss. It is painful, breathtaking, seemingly endless and exhausting. But here is the truth as I know it: the most important part of grieving is when we name, hold and share our deepest sadness, even when no one can really fix it. The being with, honoring, acknowledging and allowing for our own vulnerability allows us time, presence and the ability to surrender. Then when we are ready…we allow ourselves the process of going through. Not just enduring, but the hard work of taking one step, then another, feeling, weeping, feeling, and whatever else is our truth.
I have shared many times over the course of this blogs’ history, the relationship I have with our oldest daughter, (E for short). Yesterday, we moved her into college for the first time. It is my absolute honor to love and care for her, be her Mama, to soak in EVERY swim stroke, argument, joy-filled and driven moment. And because I believe in the full-hearted investment with her, brother and little sis, the goodbye between us with nothing short of gut-wrenching. I will spare you and myself all the details, (too soon!) but suffice to say, I am fully, going through it, in regards to goodbye to her. And I am aware of the positives about God’s plan, her readiness and the excitement ahead of her and our family.
You see, they are all true…the hope, excitement, readiness, pain, loss and questions about so many parts of this process. I KNOW without a doubt, that in order to process this complex change in my life, I MUST get comfortable with the multitude of emotions that go with this very nuanced change in our family system.
So, we have laughed, bawled, felt punched in the gut, celebrated, cheered, planned, (had a few fights,) stretched, made mistakes, asked and given forgiveness and so much more throughout her senior year. We’ve tried to be present and allow for abounding grace. We have tried to let more of the small things go, invest in the large things and remember it all with a lens of grace.
None of us can completely understand the pain of someone else, but we CAN sit and listen, be WITH, even if someone who is hurting, or simply needs quiet. We can sit in the through until we or someone else are ready to take another step to the next right thing. Then another and another. There is not one right process for any of us in regards to loss. Many, find peace and hope in Jesus. For others, it is found in being active and experiencing nature. For still others, it is the effort of just getting out of bed in the morning. Everyone’s through is a bit different from anyone else.
I don’t promise often because I am human and there is a good chance I will somehow break my promise. But…I will promise you this: if you are in the throes of pain, abandonment and disillusionment of loss, fear and darkness, Jesus is relentlessly seeking you, in order to be with you. Eugene Peterson wrote, “God loves you, He’s on your side. He’s coming after you, he’s relentless.” He is the one who doesn’t fail. And it is he, HE, who will do away with goodbye once and forever. He is hope: past, present and future.
May you feel his pursuit, his being with you, however and wherever you are; his holding you in the most painful and the hope of his making all things right and good.”
xoxo
Both/And
Psalm 13
I think, like most of America, I am dreading the next few months ahead of the next presidential election. As a therapist and a living, breathing human living in the US, I have heard so many opinions, broken-hearts, hopes, concerns and torn up family systems because of the state of our democracy.
*Here is my disclaimer, even before I write this post: This IS NOT a political post. I will not make this a post about who you vote for, why or even the passionate reasons why. I won’t, because I believe and value each person’s right to choose. Even if I disagree and even with all the contentious dialogue and tension that currently exists….
We are a society that WANTS to explain our feelings, our reasons, for many reasons. None of that is inherently wrong. We believe in OUR beliefs and our reasons – each side. And, As I age, I am all too aware of the massive damage and cost of assumptions…
Last week, our family spent a week on vacation at a beloved small lake up north on the Michigan coast. It was a delightful week of connection, rest, relaxation, fantastic food, smores and unplugging from our normal routines. For our family of 5 (plus my parents and beloved family friends) this was the 11th summer and our last one before our E heads to college in the fall. We laughed, played endless Spades and Euchre games, snacked, read, floated, soaked in the sun, had blessed conversations and tried hard to avoid social media/devices. The one exception was my dad and 18 year old daughter’s request to watch the first presidential debate.
In a recent sermon, my friend Steve Carter talked about the idea of having one grand confession daily: how confessing to ourselves, to God and to our safe, core group of people can actually allow us to greater love and depend on God. I l have been trying to be brave and practice that, so here goes…
My one grand confession today…. I really struggle with politics, as I have since I was 18. Before that, I don’t know if I honestly paid much attention. At 18, I was able to vote, tried to engage in beliefs and reasons to vote but quickly felt like it was all fake. I felt like both candidates might say the things that voters want to hear in order to get elected, were profoundly mean to one another and the whole business seemed to cultivate ugliness. Sure, I also saw most tension go away after whichever candidate was elected, but the whole process felt like bullshit to me. I always tried to vote, to educate myself the best I could, but my tolerance for it all has been low and gotten lower the last two voting cycles.
Ok, I guess one more confession…
I am so afraid this time around will be so much worse….which is why, when my family turned on last week’s debate, I sat with my back to the tv (while beating my son and his best friend in Euchre) but still hearing the already barbed, cutting and deeply painful interactions between the two current candidates. I felt my body tense as they traded insults, avoided questions and generally had little respect for one another. My insides that hope with every day to become more like Jesus, felt profoundly sad as I listened/tried NOT to listen.
I heard the commentator direct a question to President Biden, then a long bit of silence. Suddenly, I felt the hair on my neck stand up…
It was a few months into President Biden’s tenure in the White House when one of my kids came home, distraught about a friend mimicking a recent stumble the President had, while going up the stairs into Air Force One. Months before that, there were videos of President Trump mocking a disabled reporter that also greatly disturbed each of us. We as a family, value respect, care and equality in many areas. Disability is one that hits us differently because of me. Still, I am proud of our conversations, feelings of injustice and values in this regard. But when things like mocking and disrespect rear up, especially from the leaders of our country, it also hurts us a bit differently as well. My daughter was so upset that a friend who knows our family well and knows about my disability would be mocking a stumble….
That day, I took a DEEP breath and knew this would be yet another tough conversation, that stumble on the stairs for President Biden. I was not wrong. And over the course of his presidency, that stumble has cast a shadow on his cognitive abilities, his fitness as a leader and been fodder for many. In other words, many assumptions.
It leaves a knot in my stomach because of my own disability. Cerebral palsy is defined as ” a group of neurological disorders that affect a person’s ability to control their muscles and movement.” It’s caused by damage to or abnormal development of the brain before birth, during birth, or in early infancy. The term “cerebral” refers to the brain, and “palsy” refers to problems with muscle use. (Mayo Clinic).
Whew, tough to read that my own brain is “damaged, or abnormally developed.” That leaves a lot of room for interpretation….
From the time I could read (but not yet grasp the definition,) I have been afraid.
Of what, you ask?
So many things…I am afraid that when I write CP on a form ( as required on job applications when I was 16), I wouldn’t be considered for jobs because someone might assume things about me.
I am afraid that when people are new to me, see me, meet me, or arrive in my office, they might assume I have cognitive impairments because I walk different.
I have experienced people freezing up when they meet or see me because they assume…something.
I babysat for a neighbor one time, but then was told they didn’t want to have me again because they didn’t feel comfortable when I was walking with their child.
I have had people talk louder to me, speak to my husband instead of me or offer to send a nurse to my house when I was making a medical appointment.
I have spent a lifetime being afraid…of assumptions; navigating a culture that assumes SO MUCH. I have made an art form out of anticipating how people might react to me and being preemptive in order to make them and thus myself, more comfortable. I, (thank you Lord,) I have a career in therapy which made it non-negotiable that I do my own inner work with the my own therapist. These fears are far less at 51 than in my youth and yet they are still very real sometimes.
I empathize, which, hopefully, makes me good at my job with those who are also afraid of assumptions, those who have their own fears about showing who they are. (In other words, all humans.) My goals, both professionally and personally are to offer the space of acceptance, care and understanding, to exemplify Jesus Christ, whether people know him or not.
I think it is one of the ways God has worked my CP out for the good is that I both get to and must do my own work and because of CP, have a deep awareness of pain in general. I KNOW I would not be who I am without CP and, though there are many days I would like to trade the pain, I would never trade the lessons learned or who I am still becoming.
But because of it all, (the both/ands of CP), the hair on my neck stood straight up during that debate as President Biden groped for the right words, moved a bit slower and stumbled. I knew the rhetoric in the days following would be critical, assumptive and cruel because of these issues AND the deep divide in the country. It made me profoundly sad as we finished our card game that night…
The next morning, I scrolled on my phone for a few minutes before I got up.
It was so swift and so damning, the response to his performance: “Get him skilled nursing care, not a presidency.” “When is someone going to tell him to just enjoy his old age in a rocking chair…” “He is not able to walk, let alone run a country.” “A president in a wheelchair, I think not!”
I understand there will always be opinions about candidates, things we agree or disagree on. I also understand the choice to put oneself in public realm, which invites public opinions. But these are only a FEW of the assumptions, statements that are not about President Biden’s character, record or career. Rather they are a cruel and damning commentary about his physical being. These feel like attack on something else rather than a dialogue about the political issues.
Then another thought hit me so quickly it took my breath away…”if people are this cruel after his stumbles, (both literally and figuratively), what might they say about me? Right back to those fears…
I fell a couple weeks ago. I was turning a light off in the kitchen and for whatever reason, my feet got tangled and I hit the floor, hard. I wasn’t hurt, (more than my pride) other than the wrench in my back because I twisted on my way down to protect myself. I used a wheelchair the next day in church and was so anxious about the well-meaning comments and worry that I saw on friends’ faces, that I spent the morning trying to downplay the whole thing. I wonder kept wondering what people might assume because of my fall, the use of a wheelchair and the way my body is functioning as I age.
The difficulty is, we will all age, Lord willing. Would any of us want the bar that is being used with President Biden to be used on us if we stumble, forget some worlds or get lost in a conversation? Would we want to be relegated to “sitting and enjoying life” as our bodies change or be considered “finished with our identity and calling” because our physical bodies are slower, less capable or different than others? I know many whose intellect, purpose and abilities had little to do with how or what their physical bodies allowed, some of whom are young.
It’s’ a tough bar and none of us really can control how our bodies will change over time.
I am all for discussion about the issues. I don’t even mind civilized disagreement. But oh my goodness, it seems unnecessary to crucify someone because of their personhood that is beyond their control. In our house, a regular phrase is “generous assumption,” a phrase that if you know Brene Brown, you know. If you don’t, here it is…Making generous assumptions means we enter the conversation with an empty notepad. It means not creating a narrative based on a storyline that we have already played out, assuming we know another’s motives and why they do what they do. It means assuming the best about each other…. Husband reminds the kids at home, “it takes a lot more effort to be mean to be kind.” The truth of that grabs me every single time.
I’ve been trying to shake those cruel comments for the last week, my own fears and my fears for our country. I am taking a break from social media and surrounding myself with hope in all the ways I can. I am not perfect and have made my own mistakes with assumptions. But I suppose this is my way of shedding light on how assumptions can hurt all of us and perhaps my earnest plea to treat others how you want to be treated. John Bradford said, “there by the grace of God go I.”
Amen and amen.
Much love,
Both/And
Psalm 13